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Celebrating 2018's Fundraising Heroes: Community Support Manager Rowena Hamilton

Celebrating 2018's Fundraising Heroes: Community Support Manager Rowena Hamilton

As we look back on 2018, there seems no better time to celebrate the year’s fundraising heroes, who’ve worked so hard and challenged themselves to fight EB.

On 4 November this year, DEBRA’s own Community Support Manager, Rowena Hamilton courageously undertook to trek across the Sahara in aid of DEBRA.

In her role as Area Community Support Manager, Rowena helps people suffering from EB and their families in East Anglia, Berkshire and Oxfordshire, by providing practical and emotional assistance to enable them to access fundamental necessities and life changing support, such as benefits, housing, education, employment and respite.

Going one step further to fight EB, Rowena decided to take on the gruelling challenge after being inspired by the many families facing EB that she has met.

Rowena dedicated her trek to baby Dylan Talbot, who sadly lost his fight against EB aged 3 months – Rowena supported Dylan alongside his parents and the specialist EB nurses from Great Ormond Street Hospital.

Rowena says “I feel so privileged. In my job I am involved in so many families and every single individual has touched my heart and drives my passion to support those affected by EB. I wanted to support the remarkable members of DEBRA and the EB Community and also who have sadly lost their fight with EB.”

During the emotional eight-day, 100 km challenge, Rowena faced harsh conditions and battled with personal injury. Undeterred, she completed the challenge in high spirits.

“It was the hardest thing I have ever done physically and emotionally,” she says. “It has been a roller coaster of emotions with highs and those and I even had to request medical assistance on the third day after tearing a muscle in my leg. However, I carried on and enjoyed every minute of this awesome challenge. The team I went with will be friends for life. They were amazing and we helped each other through. I’m thinking of the next challenge now!”

 So far, Rowena has raised an amazing £2,700 to fight EB – you can top up her target here.

 Rowena is one of an army of fundraising heroes fighting EB, raising awareness of the condition and funds to support our work, providing care and support and making research into a cure for EB possible. Thank you. You fight EB.

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