Medical professional using a stethoscope.

Clinical practice guidelines (CPGs) are a set of recommendations for clinical care, based on evidence gained from medical science and expert opinion.

CPGs help professionals understand how to treat someone with EB. DEBRA International has produced many useful guidelines over the years, and we typically fund two guidelines each year (denoted with an asterisk* below).

Download the CPG fact sheet to learn more about how CPGs are developed.

Current guidelines

These clinical practice guidelines are developed for professionals managing EB patients; however, there is also a library of patient versions available for people living with EB, their family, friends and carers, which can be found in the Knowledge hub.

Cancer management DOWNLOAD	Constipation management* DOWNLOAD
Foot care* DOWNLOAD	Hand surgery & hand therapy* DOWNLOAD
Laboratory diagnosis DOWNLOAD	Occupational therapy DOWNLOAD
Oral health care* DOWNLOAD	Pain care DOWNLOAD
Physiotherapy DOWNLOAD	Pregnancy, childbirth & aftercare DOWNLOAD
Psychosocial care DOWNLOAD	Skin & wound care DOWNLOAD
Supporting sexuality DOWNLOAD	Palliative and end-of-life care DOWNLOAD