Clinical practice guidelines (CPGs) are a set of recommendations for clinical care, based on evidence gained from medical science and expert opinion.

CPGs help professionals understand how to treat someone with EB. DEBRA International has produced many useful guidelines over the years, and we typically fund two guidelines each year (denoted with an asterisk* below).

Download the CPG fact sheet to learn more about how CPGs are developed.

Current guidelines

These clinical practice guidelines are developed for professionals managing EB patients; however, there is also a library of patient versions available for people living with EB, their family, friends and carers, which can be found in the Knowledge hub.

Cancer management DOWNLOAD	Constipation management* DOWNLOAD
Foot care* DOWNLOAD	Laboratory diagnosis DOWNLOAD
Occupational therapy DOWNLOAD	Oral health care* DOWNLOAD
Pain care DOWNLOAD	Physiotherapy DOWNLOAD
Pregnancy, childbirth & aftercare DOWNLOAD	Psychosocial care DOWNLOAD
Skin & wound care DOWNLOAD	Supporting sexuality DOWNLOAD