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Events

Fundraising Calendar of Events

Fundraising Calendar of Events

Get involved with some of our DEBRA events. Download our Fundraising events calendar or contact our Fundraising Team to book, discuss event sponsorship or for more information. Read more

Start: 1st January, 2022 at 12:00am

End: 31st December, 2022 at 12:00am

Published: 1st January, 2020

Updated: 26th January, 2022

Author: Stephanie Webb

Location: Online and around the UK

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Skydive

Skydive

The feeling of jumping out of a plane is unmatched. To make it even more special, you can take the opportunity to support the EB Community at the same time! Read more

Start: 1st February, 2022 at 12:00am

End: 31st October, 2022 at 12:00am

Published: 1st February, 2021

Updated: 13th May, 2022

Author: Kat Heppinstall

Location: Select locations across the UK

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Parent pitstop (May)

Parent pitstop (May)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

Start: 4th May, 2022 at 12:30pm

End: 4th May, 2022 at 1:30pm

Published: 1st May, 2021

Updated: 28th April, 2022

Author: Stephanie Webb

Location: Online

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Bearwood Lakes golf day

Bearwood Lakes golf day

Bearwood Lakes provides one of the most enjoyable golf experiences in the UK - remarkable for a golf club founded in 1996 and already rated as the best inland course to be built for over 30 years. Read more

Start: 9th May, 2022 at 8:00am

End: 9th May, 2022 at 6:00pm

Published: 4th January, 2021

Updated: 28th April, 2022

Author: Wendy Garstin

Location: Bearwood Lakes Golf Club, Bearwood Road, Wokingham, RG41 4SJ

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Members' Weekend 2022

Members' Weekend 2022

Join us at our Members’ Weekend 2022 on the 14th and 15th May at Wokefield Estate, Reading, Berkshire. Read more

Start: 14th May, 2022 at 10:00am

End: 14th May, 2022 at 11:00pm

Published: 14th May, 2021

Updated: 19th May, 2022

Author: Wendy Garstin

Location: De Vere Wokefield Estate, Goodboy's Lane, Reading, RG7 3AE

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The Aberdeen Kiltwalk

The Aberdeen Kiltwalk

Kiltwalk will make its return to the stunning City and ‘Shire on Sunday 29 May. Read more

Start: 29th May, 2022 at 12:00am

End: 29th May, 2022 at 12:00am

Published: 11th June, 2021

Updated: 28th April, 2022

Author: Luis Calvo

Location: Aberdeen, Aberdeen

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Ride London 2022

Ride London 2022

RideLondon is back in 2022! This fantastic event has a new exciting route, that starts and finishes in the heart of the capital. Read more

Start: 29th May, 2022 at 12:00am

End: 29th May, 2022 at 12:00am

Published: 29th May, 2021

Updated: 13th May, 2022

Author: Stephanie Webb

Location: London

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Ferndown golf day

Ferndown golf day

From the moment you step onto the 1st tee you will be following in the footsteps of golfing legends such as Faldo, Jacklin, Langer, Lyle and Norman who have graced the fairways and greens here since the course was established in 1913. Read more

Start: 31st May, 2022 at 9:00am

End: 31st May, 2022 at 5:00pm

Published: 4th January, 2021

Updated: 28th April, 2022

Author: Wendy Garstin

Location: Ferndown Golf Club, 119 Golf Links Road, Ferndown, BH22 8BU

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Parent pitstop (June)

Parent pitstop (June)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

Start: 1st June, 2022 at 12:30pm

End: 1st June, 2022 at 1:30pm

Published: 1st June, 2021

Updated: 28th April, 2022

Author: Stephanie Webb

Location: Online

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Overstone Park golf day

Overstone Park golf day

One of the most picturesque golf courses, and quickly gaining a reputation as one of the premier golfing venues in Northamptonshire. Hosted by DEBRA supporters Simon and Helen Marriott. Read more

Start: 10th June, 2022 at 9:30am

End: 10th June, 2022 at 9:00pm

Published: 4th January, 2021

Updated: 28th April, 2022

Author: Wendy Garstin

Location: Overstone Park Hotel & Golf Leisure Resort, Billing Lane, Overstone, NN6 0AS

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Nightrider London 2022

Nightrider London 2022

Nightrider gives you the rare chance to explore the capital in the dark on your bike! This fantastic route includes all the best sights that London has to offer including Tower Bridge, Piccadilly Circus and the London eye. Read more

Start: 11th June, 2022 at 10:00pm

End: 12th June, 2022 at 8:00am

Published: 11th June, 2021

Updated: 18th May, 2022

Author: Kat Heppinstall

Location: London, London

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Surbiton golf day

Surbiton golf day

With panoramic views over Surrey. The picturesque 18 hole Par 70 parkland course offers both challenging and enjoyable golf alongside a welcoming, warm and friendly ambiance and excellent food. Read more

Start: 13th June, 2022 at 11:30am

End: 13th June, 2022 at 9:00pm

Published: 4th January, 2021

Updated: 28th April, 2022

Author: Wendy Garstin

Location: Surbiton Golf Club, Woodstock Lane, Chessington, KT9 1UG

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3D-IFS golf day at JCB Golf Club

3D-IFS golf day at JCB Golf Club

This new and exclusive course is set amid the lush green rolling countryside of Staffordshire, the course along with luxury accommodation and dining offers the ultimate in golfing retreats. Read more

Start: 20th June, 2022 at 8:00am

End: 20th June, 2022 at 5:00pm

Published: 4th January, 2021

Updated: 28th April, 2022

Author: Wendy Garstin

Location: JCB Golf and Country Club, Hollington Road, Rocester, ST14 5HY

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3D-IFS golf day at JCB Golf Club

3D-IFS golf day at JCB Golf Club

This new and exclusive course is set amid the lush green rolling countryside of Staffordshire, the course along with luxury accommodation and dining offers the ultimate in golfing retreats. Read more

Start: 21st June, 2022 at 8:00am

End: 21st June, 2022 at 5:00pm

Published: 4th January, 2021

Updated: 28th April, 2022

Author: Wendy Garstin

Location: JCB Golf and Country Club, Hollington Road, Rocester, ST14 5HY

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Parent pitstop (July)

Parent pitstop (July)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

Start: 6th July, 2022 at 12:30pm

End: 6th July, 2022 at 1:30pm

Published: 1st July, 2021

Updated: 28th April, 2022

Author: Stephanie Webb

Location: Online

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Parent pitstop (August)

Parent pitstop (August)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

Start: 3rd August, 2022 at 12:30pm

End: 3rd August, 2022 at 1:30pm

Published: 1st August, 2021

Updated: 28th April, 2022

Author: Stephanie Webb

Location: Online

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Swinley Forest golf day

Swinley Forest golf day

The splendid combination of tall pines, rhododendrons and heather, together with the excellent bunkering and general course layout, ensures Swinley Forest will always enjoy star billing. Just about every hole is a picture hole. Read more

Start: 18th August, 2022 at 7:30am

End: 18th August, 2022 at 7:30pm

Published: 4th January, 2021

Updated: 28th April, 2022

Author: Wendy Garstin

Location: Swinley Forest Golf Club, Coronation Road, Ascot, SL5 9LE

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The Dundee Kiltwalk

The Dundee Kiltwalk

Kiltwalk will make its return to the City of Discovery on Sunday 21st August. Read more

Start: 21st August, 2022 at 12:00am

End: 21st August, 2022 at 12:00am

Published: 11th June, 2021

Updated: 28th April, 2022

Author: Luis Calvo

Location: Dundee, Dundee

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Parent pitstop (September)

Parent pitstop (September)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

Start: 7th September, 2022 at 12:30pm

End: 7th September, 2022 at 1:30pm

Published: 1st September, 2021

Updated: 28th April, 2022

Author: Stephanie Webb

Location: Online

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Royal Birkdale golf day

Royal Birkdale golf day

Situated on the golden links of the North West coast, Royal Birkdale is possibly the finest of all courses in England and has been voted number one golf club in England, one of the top five clubs in the UK and amongst the top 35 in the world. Read more

Start: 8th September, 2022 at 10:30am

End: 8th September, 2022 at 9:00pm

Published: 4th January, 2021

Updated: 28th April, 2022

Author: Wendy Garstin

Location: Royal Birkdale Golf Club, Waterloo Road, Southport, PR8 2LX

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Ultra Challenge: Thames Path Challenge

Ultra Challenge: Thames Path Challenge

The Thames Path Challenge is fun, safe, and rewarding – with full support all the way, enabling you to push yourself further in wonderful historic scenery. Read more

Start: 10th September, 2022 at 12:00am

End: 11th September, 2022 at 12:00am

Published: 10th September, 2021

Updated: 13th May, 2022

Author: Stephanie Webb

Location: Various locations along the Thames Towpath, UK

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Richmond Runfest 2022

Richmond Runfest 2022

We have 2 fantastic runs available as part of the Richmond Runfest 2022. You can take on 10km or a half marathon around the beautiful grounds of Kew Gardens. Read more

Start: 10th September, 2022 at 8:15am

End: 11th September, 2022 at 6:00pm

Published: 10th September, 2021

Updated: 13th May, 2022

Author: Kat Heppinstall

Location: Kew Gardens, London, TW9 3AE

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Little Aston golf day

Little Aston golf day

Little Aston is a top quality championship course having hosted many prestigious national and international tournaments. Ranked 34 in Golf World 2019 England's Top 100 Courses, it's the highest ranking parkland course on the list. Read more

Start: 16th September, 2022 at 9:00am

End: 16th September, 2022 at 5:00pm

Published: 4th January, 2021

Updated: 28th April, 2022

Author: Wendy Garstin

Location: Little Aston Golf Club, Roman Road, Streetly, B74 3AN

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Swim Serpentine 2022

Swim Serpentine 2022

Take the opportunity to participate in an open water swimming festival at the famous Serpentine Lake in London's Hyde Park. Challenge yourself to a one mile, two mile or six mile swim. Read more

Start: 17th September, 2022 at 8:00am

End: 17th September, 2022 at 6:00pm

Published: 18th May, 2022

Author: Luis Calvo

Location: Serpentine Lido, Hyde Park, London, W2 2UH

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  • Current projects

    Current projects

    Find information about the EB research projects we currently fund.

  • Swim Serpentine 2022

    Swim Serpentine 2022

    Take the opportunity to participate in an open water swimming festival at the famous Serpentine Lake in London's Hyde Park. Challenge yourself to a one mile, two mile or six mile swim.

  • Bath Half Marathon 2023

    Bath Half Marathon 2023

    Join #TeamDEBRA and take on this challenge through the beautiful city of Bath. We will support you every step of the way.

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    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

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  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

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    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

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    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

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