Help us shape the type of support we can offer in the future.

Please complete this short survey - it takes 5-10 minutes to complete and all entries will be entered to win the mystery prize draw. Survey closes Sunday, 15 September

Watch our animation which explains EB and what life is like for those living with the condition.

We are looking for volunteers for our retail shops across the UK. 

Sign up today to develop valuable skills for life, enhance your CV and have a lot of fun whilst making a difference

Nine participants trekked across the Aletsch Glacier in Switzerland to raise funds for DEBRA Nurses. 2 days , 14 miles of ice, ropes, crampons and nerves of steel!

Tom Holland, star of Spider-Man Far from Home, is helping to fight EB through sales of new T-shirt design produced by the Brothers Trust, a not-for-profit organisation run by him and his family.

Join researchers, healthcare professionals and other members of the EB Community in London for the 1st Global Congress on Epidermolysis Bullosa