We are DEBRA
DEBRA is a UK national medical research charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, epidermolysis bullosa (EB) also known as ‘butterfly skin’.
Support for the EB Community
Want to join the community?
We have a dedicated team to support people living with EB by providing information and advice plus practical, financial, and emotional support. Becoming a member is free and offers opportunities to connect with others living with EB.
Our charity shops
By shopping in DEBRA’s charity shops, you are helping people living with EB, as well as being good for your purse and our planet.
They did it…again!
Find out more about Team DEBRA’s epic swim challenge. There’s also still time to sponsor them.
Join Team EB
We need YOU to join stars like Scott Brown and Emma Dodds. Choose your challenge, sign up, recruit your sponsors, and BE the difference for EB.
