
We are DEBRA
We are the patient support organisation for people affected by epidermolysis bullosa (EB) – butterfly skin. We are also one of the largest funders of research into EB treatments and cures.

Become a member
Membership is free and open to anyone living with EB or supporting someone with EB: parents, carers, family members, healthcare professionals and researchers. As a member, you can access practical, emotional, and financial support, plus opportunities to connect with others in the EB community.



Our charity shops
By shopping in DEBRA’s charity shops, you are helping people living with EB, as well as being good for your purse and our planet.

Pain won’t wait. Neither will we.
Help us expand our search for treatments and cures of EB. Double your donation today through the Big Give.

Join Team EB
We need YOU to join stars like Scott Brown and Emma Dodds. Choose your challenge, sign up, recruit your sponsors, and BE the difference for EB.