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Baby Darcie, who lives with EB, with visible skin redness and irritation lies on a bed, holding a cloth and looking towards the camera.

Stop the Pain Appeal

Together, we can invest £20m over five years to transform life for people with epidermolysis bullosa (EB) – helping them live longer and better.

Find out more   Donate now

 

EB Helpline

If you are living with EB, please call us on 01344 577 689.  Open Monday to Friday from 8am to 5:30pm.

Or find answers to most of your questions 24/7 using our chatbot. Just click the icon on the bottom-right corner of the screen.

Read our emergency information

Interior of a DEBRA charity shop offering a vibrant selection of clothes and other items.

Our charity shops

By shopping in DEBRA’s charity shops, you are helping people living with EB, as well as being good for your purse and our planet.

Find a DEBRA shop
Two women stand and talk at an event. One, representing DEBRA UK member services, holds papers, while the other wears a blue shirt with a name tag. Attendees mingle in the background. Two women stand and talk at an event. One, representing DEBRA UK member services, holds papers, while the other wears a blue shirt with a name tag. Attendees mingle in the background.

Become a DEBRA member

It’s free, easy, and gives you access to our wide range of support and benefits. It only takes a matter of seconds to join our community.

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DEBRA Events

Find all DEBRA events

Dragon Boat Race 2027

Join #TeamDEBRA for the London Dragon Boat Race 2027! Get ready for an unforgettable day of fun, teamwork, and friendly...
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London to Brighton Bike Ride 2026

Cycle 54 miles with #TeamDEBRA in June. Starting at Clapham Common and finishing on Brighton Beach. Join hundreds of cyclists of all experience levels for this iconic challenge!

 

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DEBRA Great Chefs’ Dinner 2026

Hosted by Michel Roux, the DEBRA Great Chefs’ Dinner returns to The Langham, London on Monday 28 September 2026. DEBRA’s...
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Latest news & blogs from DEBRA

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A man wearing glasses and a white T-shirt sits smiling in front of shelves stocked with colourful packets of sweets.
10th July 2026

Bon Bons to help stop the pain of EB!

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A group of people
8th July 2026

DEBRA publishes new Global EB Taskforce outcomes report

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An older man sits next to a young girl with glasses and a plaster cast on her arm. They are facing each other, appearing to have a serious conversation.
3rd July 2026

DEBRA UK calls for urgent action to protect vital care for Isla Grist as she moves into adult services

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