With your support, we will continue investing in drug repurposing clinical trials and providing an enhanced programme of community care and support for people living with EB. Read more
Sign up for just £1 a week to the DEBRA lottery and you could win up to £25,000 in our weekly Friday draw! Read more
You are invited to DEBRA UK Members' Weekend taking place on Saturday 18 and Sunday 19 May 2024 at Drayton Manor Resort (hotel, theme park and zoo). Read more
DEBRA is a national charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.
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If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.
DEBRA funds research to find effective treatments that will lessen the day-to-day impact of EB, and, ultimately, to find cures to eradicate EB.
Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.
Take on Reading Half Marathon with #TeamDEBRA in 2024! Finish this amazing challenge with 15,000 people cheering you on in the Madejski Stadium! Read more
We are delighted to announce that our dinner with rugby legend Jason Robinson OBE raised an impressive over £35,000 for our BE the difference for EB appeal. Read more
Two fantastic fundraisers have taken place in February to help those living with EB and to kick start our 2024 appeal, ‘BE the difference for EB’. Read more
We're thrilled to unveil our highly anticipated 2024 events calendar, encouraging supporters to actively get involved and make a meaningful impact on the lives of those affected by EB. Read more