DEBRA is a national charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.

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Become a member

If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.


Author: Wendy Garstin

Our research into treatments & cure(s)

DEBRA funds research to find effective treatments that will lessen the day-to-day impact of EB, and, ultimately, to find cures to eradicate EB.



Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.


Author: Amy Counihan

Make a donation

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Our Impact


years of commitment to EB


invested in EB research


research projects

Latest events

  • Jump in July

    Take on an exhilarating tandem skydive throughout the month of July. Choose your date and location and experience the thrill of a skydive! Read more

  • Tough Mudder

    Get ready to dive into the exciting world of Tough Mudder. Join #TeamDEBRA for the ultimate obstacle course challenge! Read more

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