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A man in a purple shirt and sunglasses talks to a woman in a blue shirt holding a folder outside.

Become a member

Membership is free and open to anyone living with EB or supporting someone with EB: parents, carers, family members, healthcare professionals and researchers. As a member, you can access practical, emotional, and financial support, plus opportunities to connect with others in the EB community.

Become a DEBRA member

A young child in a red shirt sits at a table, smiling and drawing on paper with coloured pencils.

We are DEBRA

We are the patient support organisation for people affected by epidermolysis bullosa (EB) – butterfly skin. We are also one of the largest funders of research into EB treatments and cures.

Find out more

EB helpline

Call us on 01344 577 689. Open Monday to Friday from 8am to 5:30pm.

Or find answers to most of your questions 24/7 using our chatbot. Just click the icon on the bottom-right corner of the screen.

Read our emergency information

A scientist in a lab coat holding a petri dish talks to a colleague.

Two scientists in lab coats, one holding a petri dish, converse in a laboratory.

Interior of a DEBRA charity shop offering a vibrant selection of clothes and other items.

Our charity shops

By shopping in DEBRA’s charity shops, you are helping people living with EB, as well as being good for your purse and our planet.

Find a DEBRA shop

A flag emblazoned with "Drayton Manor Resort" in front of a tower.

Members’ Weekend 2026 applications now open

Members’ Weekend is returning to Drayton Manor Resort on Saturday 16 and Sunday 17 May. Apply now to secure your place!

Apply here

DEBRA Events

Find all DEBRA events

Ultra Challenge Series 2026

Join #TeamDEBRA for the UK’s No 1 Series of treks & trail runs! Take on a challenge at your pace...

DEBRA Butterfly Ball 2026

Join us for a dazzling night of vintage elegance and modern magic as the DEBRA Butterfly Ball makes its glamorous return to The Landmark London.

Dalai Lama Himalayan Trek – Open Challenge

Join #TeamDEBRA in 2026 for the Dalai Lama Himalayan Trek. From the madness of Delhi, travel off the beaten path,...

Latest news & blogs from DEBRA

See all news

DEBRA ambassador Claude Brown smiling, wearing a dark suit, light pink shirt, patterned tie, and purple pocket square, standing indoors.

5th February 2026

Claude Brown Appointed as DEBRA Ambassador

Modern laboratory with workstations, computers displaying cell images, a microscope, and glassware filled with coloured liquids—where shelves of equipment shine under bright lights.

4th February 2026

A new era of hope for people living with EB

A magazine page features an article on epidermolysis bullosa, including a photo of Tim Riley, tips for treating EB, and text about living with the condition and podiatry management.

30th January 2026

The Podiatrist magazine’s new article on EB