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DEBRA ambassador Isla Grist and DEBRA vice-president Graeme Souness. Smiling and seating next to each other, they share a warm moment.

We are DEBRA

DEBRA is a UK national medical research charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, epidermolysis bullosa (EB) also known as ‘butterfly skin’.

Support for the EB Community

Want to join the community?

We have a dedicated team to support people living with EB by providing information and advice plus practical, financial, and emotional support. Becoming a member is free and offers opportunities to connect with others living with EB.

become a member

In case of emergency

Need urgent care? In an emergency call 999.

For non-emergencies contact NHS 111 or your GP.

Emergency information
 

Interior of a DEBRA charity shop offering a vibrant selection of clothes and other items.

Our charity shops

By shopping in DEBRA’s charity shops, you are helping people living with EB, as well as being good for your purse and our planet.

The DEBRA Team celebrate their success in the sea after completing the 2025 swim challenge.

They did it…again!

Find out more about Team DEBRA’s epic swim challenge. There’s also still time to sponsor them.

Scott Brown and Emma Dodds stand beside the text "JOIN TEAM EB," with the Daily Record and DEBRA UK logos displayed on a vibrant, colorful background.

Join Team EB

We need YOU to join stars like Scott Brown and Emma Dodds. Choose your challenge, sign up, recruit your sponsors, and BE the difference for EB.

Logo of DEBRA UK. The logo features blue butterfly icons and the organization's name. Underneath, the tagline reads "The Butterfly Skin Charity.
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