Become a member
Membership is free and open to anyone living with EB or supporting someone with EB: parents, carers, family members, healthcare professionals and researchers. As a member, you can access practical, emotional, and financial support, plus opportunities to connect with others in the EB community.
We are DEBRA
We are the patient support organisation for people affected by epidermolysis bullosa (EB) – butterfly skin. We are also one of the largest funders of research into EB treatments and cures.
EB helpline
Call us on 01344 577 689. Open Monday to Friday from 8am to 5:30pm.
Or find answers to most of your questions 24/7 using our chatbot. Just click the icon on the bottom-right corner of the screen.
Our charity shops
By shopping in DEBRA’s charity shops, you are helping people living with EB, as well as being good for your purse and our planet.
Visit our online shop
Shop DEBRA’s Christmas cards and gift wrap — spread festive cheer and help support people living with butterfly skin.
The Longest Night
Will you bring light to families facing the darkest periods of their lives?
