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Baby Darcie, who lives with EB, is being held by her dad.

Please help us stop the pain of EB

EB (epidermolysis bullosa) is a group of incredibly painful genetic skin conditions that cause the skin to blister and tear at the slightest touch. Your support helps us improve quality of life today and secure treatments for tomorrow.

Donate now  Discover more

EB Helpline

If you are living with EB, please call us on 01344 577 689.  Open Monday to Friday from 8am to 5:30pm.

Or find answers to most of your questions 24/7 using our chatbot. Just click the icon on the bottom-right corner of the screen.

Read our emergency information

Interior of a DEBRA charity shop offering a vibrant selection of clothes and other items.

Our charity shops

By shopping in DEBRA’s charity shops, you are helping people living with EB, as well as being good for your purse and our planet.

Find a DEBRA shop
A flag emblazoned with "Drayton Manor Resort" in front of a tower.

Members’ Weekend 2026 applications now open

Members’ Weekend is returning to Drayton Manor Resort on Saturday 16 and Sunday 17 May. Apply now to secure your place!

Apply here

DEBRA Events

Find all DEBRA events

DEBRA Clay Pigeon Sporting Challenge 2026

Join us for DEBRA’s Clay Pigeon Sporting Challenge at the prestigious E.J. Churchill Shooting Ground, set amongst 40 acres of woodland on the stunning West Wycombe Estate in Buckinghamshire.

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Dragon Boat Race 2026

Join #TeamDEBRA for the London Dragon Boat Race 2026! Get ready for an unforgettable day of fun, teamwork, and friendly...
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London to Brighton Bike Ride 2026

Cycle 54 miles with #TeamDEBRA in June. Starting at Clapham Common and finishing on Brighton Beach. Join hundreds of cyclists of all experience levels for this iconic challenge!

 

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Latest news & blogs from DEBRA

See all news
Four people stand around a table with boxes and leaflets, smiling and talking at an indoor event. Two wear blue shirts with logos. Other people are seated in the background.
13th April 2026

NWVA Charity football match at London Stadium raises £55,000+ for DEBRA UK

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Four men stand in front of a "Charity Furniture & Electrical" shop in Southsea, holding signs and paint tins as part of a decorating effort. The shopfront displays sofas and lamps through large windows.
25th March 2026

Portsmouth Decorating College students transform DEBRA Southsea shop

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A woman holds printed charts, discussing research findings with a colleague at a desk; a screen and flipchart with graphs are visible in the background.
19th March 2026

EB Research News Summary: November 2025 – February 2026

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Logo of DEBRA UK. The logo features blue butterfly icons and the organization's name. Underneath, the tagline reads "The Butterfly Skin Charity.
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