We have listened to your feedback and are pleased to announce some of the exciting things we have planned. We have limited spaces available - book now!

Volunteers from across the UK flew to Sweden to take on the Arctic Survival Challenge 2020 to raise money for the #FightEB appeal.

Watch our animation which explains EB and what life is like for those living with the condition.

The EB World Congress held in  January 2020 was the first global Congress on EB, bringing together the world’s leading experts in EB research, clinical management, and the EB Community.

We need your help to raise £482,639 to alleviate pain, itch, mental health difficulties and open wounds in those with EB.

We are delighted to announce that DEBRA Members' can now book a 2 week stay in our holiday homes in our new pilot scheme for 2020.

Friends Groups are regional, family led groups who raise funds and awareness for DEBRA in their local communities. Start a Friends Group in your area now.