We’re delighted to say that The Brothers Trust have released a limited edition t-shirt with all proceeds to go to DEBRA and the launch of the #FightEB campaign

Watch our animation which explains EB and what life is like for those living with the condition.

Why not enjoy a festive winter break this year where you can enjoy stunning scenery, snuggle up and spend quality time together or head out to local villages to join their Christmas and New Year festivities.

The 2020 EB World Congress is taking place at the Park Plaza London Riverbank hotel. Book your on-site accommodation today.

Would you like to boost your confidence, develop valuable skills for life, enhance your CV and have a lot of fun whilst making a difference?

We are looking for volunteers for our retail shops across the UK.

Our EB Get-Togethers offer the opportunity to meet other people living with EB in similar circumstances and exchange advice and support with each other.