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A man in a purple shirt and sunglasses talks to a woman in a blue shirt holding a folder outside.

Become a member

Membership is free and open to anyone living with EB or supporting someone with EB: parents, carers, family members, healthcare professionals and researchers. As a member, you can access practical, emotional, and financial support, plus opportunities to connect with others in the EB community.

A woman, a girl in a wheelchair, and a man kneel together outdoors with a small dog sitting on the woman's lap. Smiling at the camera, they share a joyful moment supported by DEBRA UK. DEBRA member Jasmine Ritchie, in a motorized wheelchair, and her parents pose outdoors with a small dog on the girl's lap.

We are DEBRA

We are the patient support organisation for people affected by epidermolysis bullosa (EB) – butterfly skin. We are also one of the largest funders of research into EB treatments and cures.

EB helpline

Call us on 01344 577 689.  Open Monday to Friday from 8am to 5:30pm.

Or find answers to most of your questions 24/7 using our chatbot. Just click the icon on the bottom-right corner of the screen.

Read our emergency information

Interior of a DEBRA charity shop offering a vibrant selection of clothes and other items.

Our charity shops

By shopping in DEBRA’s charity shops, you are helping people living with EB, as well as being good for your purse and our planet.

Illustration of a Christmas tree with ornaments and presents below, set against a blue background with hanging baubles and snowflakes.

Visit our online shop

Shop DEBRA’s Christmas cards and gift wrap — spread festive cheer and help support people living with butterfly skin.

Logo of DEBRA UK. The logo features blue butterfly icons and the organization's name. Underneath, the tagline reads "The Butterfly Skin Charity.
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