Your gift this Christmas will help EB families access the specialist healthcare they so desperately need. Read more
We are pleased to be able to share with you EB Connect, a private online social collaboration platform for the global EB community. Read more
12 fully recyclable card designs to choose from, with each purchase helping to make a real difference to those living with EB. Read more
Santa in the City is the perfect way to get you, your friends, and your family into the London festive spirit! Run, jog, or walk the 5km festive fun run on the 7th December. Read more
DEBRA is a national charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.
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If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.
DEBRA funds research to find effective treatments that will lessen the day-to-day impact of EB, and, ultimately, to find cures to eradicate EB.
Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.
Join #TeamDEBRA for this BRAND NEW 10k. Take in the famous landmarks of the Newcastle Quayside on this fast and flat closed-road course. Great for beginners and experienced runners! Read more
Join London’s best winter walk, and kick start your New Year fitness regime. Starting and finishing at The Oval Cricket Ground, choose between a full marathon, half marathon or 10k. Read more
Join #TeamDEBRA for Barcelona Marathon 2024. One of the most popular marathons in Europe. You’ll take in the sights such as the Camp Nou and Sagrada Familia as you run through the city. Read more
We’re thrilled to announce our dine with DEBRA lunch aboard the floating Fingal hotel in Edinburgh has raised £20,000 towards our A Life Free of Pain appeal. Read more
We're delighted to announce that our annual Fight Night event has raised over £180,000 to help #FightEB, making it DEBRA's most successful Fight Night in 15 years! Read more
We took a further step on our government campaigning journey today (Wednesday 22nd November) with a meeting held at the Scottish parliament with Jennie Minto MSP for Argyll and Bute and Minister for Public Health and Women's Health in Scotland, and our meeting sponsor, Bob Dorris, MSP for Glasgow Maryhill and Springburn. Read more