Last year Fazeel was featured on Paul O’Grady’s Little Heroes. You can watch the message he sent in at 13:45 on the BBC Iplayer now.

Watch our animation which explains EB and what life is like for those living with the condition.

Our EB Get-Togethers offer the opportunity to meet other people living with EB in similar circumstances and exchange advice and support with each other.

We are looking for volunteers for our retail shops across the UK. 

Sign up today to develop valuable skills for life, enhance your CV and have a lot of fun whilst making a difference

Tom Holland, star of Spider-Man Far from Home, is helping to fight EB through sales of new T-shirt design produced by the Brothers Trust, a not-for-profit organisation run by him and his family.

Help us shape the type of support we can offer in the future.

Please complete this short survey - it takes 5-10 minutes to complete and all entries will be entered to win the mystery prize draw. Survey closes Sunday, 15 September