DEBRA is a national charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.

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Become a member

If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.


Author: Wendy Garstin

Our research into treatments & cure(s)

DEBRA funds research to find effective treatments that will lessen the day-to-day impact of EB, and, ultimately, to find cures to eradicate EB.



Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.


Author: Amy Counihan

Make a donation

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Our Impact


years of commitment to EB


invested in EB research


research projects

Latest events

  • Newcastle 10k

    Join #TeamDEBRA for this BRAND NEW 10k. Take in the famous landmarks of the Newcastle Quayside on this fast and flat closed-road course. Great for beginners and experienced runners! Read more

  • London Winter Walk 2024

    Join London’s best winter walk, and kick start your New Year fitness regime. Starting and finishing at The Oval Cricket Ground, choose between a full marathon, half marathon or 10k. Read more

  • Barcelona Marathon 2024

    Join #TeamDEBRA for Barcelona Marathon 2024. One of the most popular marathons in Europe. You’ll take in the sights such as the Camp Nou and Sagrada Familia as you run through the city. Read more

Latest updates