DEBRA is a national charity and patient support group for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.

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Become a member

DEBRA exists to support the EB community with a range of services intended to enhance quality of life. Becoming a member of DEBRA is free and makes it easier to access our services and exclusive benefits.


Author: Wendy Garstin

Our research into treatments & cure(s)

DEBRA funds research to find effective treatments that will lessen the day-to-day impact of EB, and, ultimately, to find cures to eradicate EB.



Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.


Author: Amy Counihan

Make a donation

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Our Impact


years of commitment to EB


invested in EB research


research projects

Latest events

  • 100km Challenge 2022

    Fundraise for DEBRA UK by taking on our 100km challenge this August! You can walk, run, wheel, cycle – the possibilities are endless! Read more

  • Richmond Runfest 2022

    We have 2 fantastic runs available as part of the Richmond Runfest 2022. You can take on 10km or a half marathon around the beautiful grounds of Kew Gardens. Read more

  • Show Your Seams

    Friday 21st October 2022 is #ShowYourSeams day. Don't miss out, sign up your school or company today. Wear your clothes inside out and make a donation to help improve the lives of people living with EB. Read more

Latest updates