DEBRA is a national charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.

Find out more

Become a member

If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.


Author: Wendy Garstin

Our research into treatments & cure(s)

DEBRA funds research to find effective treatments that will lessen the day-to-day impact of EB, and, ultimately, to find cures to eradicate EB.



Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.


Author: Amy Counihan

Make a donation

Please select a donation amount (required)

Our Impact


years of commitment to EB


invested in EB research


research projects

Latest events

  • Reading Half Marathon 2024

    Take on Reading Half Marathon with #TeamDEBRA in 2024! Finish this amazing challenge with 15,000 people cheering you on in the Madejski Stadium! Read more

  • Members' Weekend 2024

    You are invited to DEBRA UK Members' Weekend taking place on Saturday 18 and Sunday 19 May 2024 at Drayton Manor Resort (hotel, theme park and zoo). Read more

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