Watch our animation which explains EB and what life is like for those living with the condition.

Take a break at our Holiday Homes in Poole and Weymouth this October!

The 2020 EB World Congress is taking place at the Park Plaza London Riverbank hotel. Book your on-site accommodation today.

Would you like to boost your confidence, develop valuable skills for life, enhance your CV and have a lot of fun whilst making a difference?

We are looking for volunteers for our retail shops across the UK.

Our EB Get-Togethers offer the opportunity to meet other people living with EB in similar circumstances and exchange advice and support with each other.

Tom Holland, star of Spider-Man Far from Home, is helping to fight EB through sales of new T-shirt design produced by the Brothers Trust, a not-for-profit organisation run by him and his family.

Help us shape the type of support we can offer in the future.

Please complete this short survey - it takes 5-10 minutes to complete and all entries will be entered to win the mystery prize draw. Survey closes Sunday, 13 October