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Graeme Souness CBE wearing a black wetsuit and yellow swimming cap stands against a clear blue sky, ready to plunge into the waters for the DEBRA UK charity swim.

Challenge 2025

Graeme and the team are back in 2025 for their greatest challenge yet.

Will you join them and be a part of Team DEBRA?

Sponsor Graeme & the team

Baby Albi who lives with recessive dystrophic epidermolysis bullosa (RDEB). Albi reclines in a stroller, playfully lifting one foot.

Baby Albi who lives with recessive dystrophic epidermolysis bullosa (RDEB). Albi reclines in a stroller, playfully lifting one foot.

We are DEBRA

DEBRA is a UK national medical research charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, epidermolysis bullosa (EB) also known as ‘butterfly skin’.

Find out more

Support for the EB Community

Want to join the community?

We have a dedicated team to support people living with EB by providing information and advice plus practical, financial, and emotional support. Becoming a member is free and offers opportunities to connect with others living with EB.

become a member

In case of emergency

Need urgent care? In an emergency call 999.

For non-emergencies contact NHS 111 or your GP.

Emergency information

A scientist in a lab coat holding a petri dish talks to a colleague.

Two scientists in lab coats, one holding a petri dish, converse in a laboratory.

Interior of a DEBRA charity shop offering a vibrant selection of clothes and other items.

Our charity shops

By shopping in DEBRA’s charity shops, you are helping people living with EB, as well as being good for your purse and our planet.

Find a DEBRA shop

DEBRA Events

Find all DEBRA events

Isle of Arran kayaking challenge

The Isle of Arran is often called “Scotland in miniature” for its ability to capture the essence of the entire...

DEBRA Members’ Weekend 2025 – May 17-18

Members’ Weekend is a great opportunity to connect, share and inspire each other. You’ll be able to meet other members...

Photo Finish: Scottish Grand National

We’re taking over a trackside marquee at the finishing post, the perfect spot to view the racing and soak up...

Latest news & blogs from DEBRA

See all news

Director of Member Services Claire Mather at the EWMA conference.

16th April 2025

DEBRA UK attends European Wound Management conference

The front cover of DEBRA's new membership guide, featuring a collage of images of members of the EB community.

10th April 2025

DEBRA UK launches new complete guide to membership

Graeme Souness CBE and Isla Grist doing an interview for ITV News.

Graeme Souness CBE and Isla Grist media interviews