With the high temperatures set to continue, we need your help. We are aiming to raise £10,000 to help stop the pain for people living with EB. Read more
We have been responsible, through funding life changing research, for establishing much of what is now known about EB. Read more
Leaving a gift in your will is a simple but vital way to help make sure DEBRA is there to provide care and support to people living with EB and fund life changing research. Read more
Did you know you can also support DEBRA by shopping on-line through our eBay Shop? Get yourself a bargain! Read more
DEBRA is a national charity and patient support group for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.
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DEBRA exists to support the EB community with a range of services intended to enhance quality of life. Becoming a member of DEBRA is free and makes it easier to access our services and exclusive benefits.
DEBRA funds research to find effective treatments that will lessen the day-to-day impact of EB, and, ultimately, to find cures to eradicate EB.
Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.
Fundraise for DEBRA UK by taking on our 100km challenge this August! You can walk, run, wheel, cycle – the possibilities are endless! Read more
We have 2 fantastic runs available as part of the Richmond Runfest 2022. You can take on 10km or a half marathon around the beautiful grounds of Kew Gardens. Read more
Friday 21st October 2022 is #ShowYourSeams day. Don't miss out, sign up your school or company today. Wear your clothes inside out and make a donation to help improve the lives of people living with EB. Read more
We were delighted to welcome American philanthropist, Lenore England, to our Greenwich retail store. Read more
29 of the team from AVEVA took part in a group skydive at Sibson Aerodrome to raise money to #FightEB! Read more
An Early Day Motion (EDM) has been submitted to parliament supporting our request for government funding to accelerate clinical trials and secure approved treatments for people living with EB in the UK. Read more