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Isla, who lives with recessive dystrophic epidermolysis bullosa (RDEB), playing with her dog. Isla, who lives with recessive dystrophic epidermolysis bullosa (RDEB), playing with her dog.

We are DEBRA

DEBRA is a UK national medical research charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, epidermolysis bullosa (EB) also known as ‘butterfly skin’.

Support for the EB Community

Want to join the community?

We have a dedicated team to support people living with EB by providing information and advice plus practical, financial, and emotional support. Becoming a member is free and offers opportunities to connect with others living with EB.

become a member

In case of emergency

Need urgent care? In an emergency call 999.

For non-emergencies contact NHS 111 or your GP.

Emergency information
 

Interior of a DEBRA charity shop offering a vibrant selection of clothes and other items.

Our charity shops

By shopping in DEBRA’s charity shops, you are helping people living with EB, as well as being good for your purse and our planet.

Graeme Souness CBE wearing a black wetsuit and yellow swimming cap stands against a clear blue sky, ready to plunge into the waters for the DEBRA UK charity swim.

Challenge 2025

Graeme and the team are back in 2025 for their greatest challenge yet, will you join them and be a part of Team DEBRA?