DEBRA is a national charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.

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Become a member

If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.


Author: Wendy Garstin

Our research into treatments & cure(s)

DEBRA funds research to find effective treatments that will lessen the day-to-day impact of EB, and, ultimately, to find cures to eradicate EB.



Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.


Author: Amy Counihan

Make a donation

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Our Impact


years of commitment to EB


invested in EB research


research projects

Latest events

  • 80 Days Global Virtual Challenge

    Join #TeamDEBRA on an incredible virtual journey across the globe and BE the difference for EB! 🌍 Read more

  • DEBRA Clay Pigeon Sporting Challenge

    Participate in five team flurries offering varied and challenging shooting, followed by a champagne reception and two course lunch. Read more

  • Great North Swim

    Join #TeamDEBRA for the Great North Swim. Take on this one-mile swim which is suitable for all abilities at Lake Windermere in the beautiful Lake District. Read more

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