The EB World Congress held in  January 2020 was the first global Congress on EB, bringing together the world’s leading experts in EB research, clinical management, and the EB Community.

Watch our animation which explains EB and what life is like for those living with the condition.

We need your help to raise £482,639 to alleviate pain, itch, mental health difficulties and open wounds in those with EB.

Find out what to expect at our annual Members’ Weekend and AGM 2020 on the 2nd - 3rd May at Wokfield Park, Reading, Berkshire. 

Not booked your 2020 holiday yet? We have 6 amazing holiday homes on 5 star rated parks around the UK to choose from.

Friends Groups are regional, family led groups who raise funds and awareness for DEBRA in their local communities. Start a Friends Group in your area now.