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Sasha Bahlyk, who lives with EB, smiles and reaches for soap bubbles outdoors near a brick wall and metal fence.

We are DEBRA

We are the patient support organisation for people affected by epidermolysis bullosa (EB) – butterfly skin. We are also one of the largest funders of research into EB treatments and cures.

A man in a purple shirt and sunglasses talks to a woman in a blue shirt holding a folder outside.

Become a member

Membership is free and open to anyone living with EB or supporting someone with EB: parents, carers, family members, healthcare professionals and researchers. As a member, you can access practical, emotional, and financial support, plus opportunities to connect with others in the EB community.

Need urgent care?

In an emergency call 999. For non-emergencies contact NHS 111 or your GP.

Read our emergency information

Interior of a DEBRA charity shop offering a vibrant selection of clothes and other items.

Our charity shops

By shopping in DEBRA’s charity shops, you are helping people living with EB, as well as being good for your purse and our planet.

Lucy Beall Lott, who lives with EB, sits at a table, resting her chin on her hands. The Big Give logo appears in the bottom left corner.

Pain won’t wait. Neither will we.

Help us expand our search for treatments and cures of EB. Double your donation today through the Big Give.

Scott Brown and Emma Dodds stand beside the text "JOIN TEAM EB," with the Daily Record and DEBRA UK logos displayed on a vibrant, colorful background.

Join Team EB

We need YOU to join stars like Scott Brown and Emma Dodds. Choose your challenge, sign up, recruit your sponsors, and BE the difference for EB.

Logo of DEBRA UK. The logo features blue butterfly icons and the organization's name. Underneath, the tagline reads "The Butterfly Skin Charity.
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