Our policies

Latest

06. The Beacon Patient Pairing Scheme 4th September – 30th October 2024
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DEBRA UK supporters, Paul Glover and Martyn Rowley, raise £115,000 for families living with EB

On Tuesday 3rd September, dedicated DEBRA UK supporters Paul Glover and Martyn Rowley were welcomed to DEBRA UK's head office to celebrate their outstanding achievement of raising £115,000 in 2024 to support those living with EB.
DEBRA UK Challenge 2024

This September, please support Graeme Souness in his challenge to ‘BE the difference for EB’.

Our partners

At DEBRA we are proud to work in partnership with healthcare, research, and corporate partners across the UK and internationally.
ESG - Environmental, Social and Governmental

At DEBRA, we are working hard to become a more sustainable and environment-friendly organisation in everything we do and everyone we work with.
How we spend our money

Find out how DEBRA fundraises and the activities that its fundraising supports.
Equality, Diversity & Inclusion

For a community to thrive, every member needs to feel valued, listened to, respected, welcome and represented.
Our senior leadership team

Our senior leadership team works towards our mission of improving the quality of life for people living with EB and our search for a cure.
Our trustee board

Our Board of Trustees is made up from a majority of those who have a direct experience of EB, who either have EB themselves or have a close family member with EB, and those who have skills and experience that will add value to the governance and leadership of DEBRA.
Our reports

Find out what we've achieved over the past year and how we've put your money to good use supporting people living with EB.
Our committees

Our Board of Trustees includes people from a variety of backgrounds and skills. To ensure best business practice, we have four board-level committees.
Our strategy

Together, over the past 40 years, we have achieved a lot and have a proud history. We were the first organisation in the world established to focus on EB.
Our values

Our values provide a set of common beliefs, behaviours and understanding to support and enable us to work collectively to achieve our mission.