This page includes resources for healthcare professionals treating and managing EB patient care. Please visit the Knowledge hub for resources relevant to non-medical professionals.

 

Publications

In addition to DEBRA International's Clinical Practice Guidelines, there are a number of additional resources available to professionals managing EB patient care.

• Surgical Procedures
• Hand Splinting Recommendations and Exercises for Children with epidermolysis bullosa (© Birmingham Children's Hospital NHS Trust, available here by kind permission of the Birmingham Children's Hospital Occupational Therapy team)

Birmingham Women's & Children's NHS Foundation Trust has also produced a variety of leaflets and educational videos for professionals.

 

How to make a referral to the Community Support Team

Our community support team works closely with medical and health professionals. To learn more about this referral process, please read the referrals policy.

Please check our policies page for the latest information.

 

EB-CLINET

EB-CLINET is an initiative to improve medical care for people with EB by encouraging collaboration between health care professionals working with EB

 

Mental Health and Rare Disease

Medics 4 Rare Diseases have launched a new online course, 'Mental Health and Rare Disease', consisting of 8 interactive lessons. 

Find out more

 

DISCLAIMER

DEBRA cannot be held responsible for the content of external sites.