The UK is a step closer to having the first approved treatment for EB patients. Read more
On the 18th June 2022, Mark Algar & Paul Buckworth took on an 113km Ultramarathon to help #FightEB. Read more
Our #DEBRAMemoryMakers campaign has raised an incredible £55,119.30 towards our DEBRA holiday homes! Read more
Lizzie is a 29 Year Old filmmaker who has EB Simplex. In October she is running the London Marathon for DEBRA. Read more
This week we are celebrating National Volunteers’ Week (1-7 June) and thanking all our amazing volunteers for the time they give to DEBRA. We couldn’t fight EB without them. Read more
On behalf of everyone at DEBRA, we'd like to pass on our congratulations to Her Majesty The Queen on her Platinum Jubilee. Read more
DEBRA Members' Weekend is an opportunity for our Members to connect with others living with EB, share experiences, meet our community support, healthcare and research leads, and have fun! Read more
You can help us to raise awareness of EB and the need for additional funding to support drug repurposing. Read more
We'd like to say a huge congratulations to our DEBRA Ambassador, Lucy Beall, who is featured in the June/July edition of Cosmopolitan magazine! Read more
We're delighted to announce that our Dinner with Wine Tasting raised a fantastic £20,000! Read more
Amryt Pharma announces that the European Medicines Agency's (EMA) Committee for Medicinal Products for Human Use (CHMP) has adopted a positive opinion, recommending the approval of a new wound treatment for Dystrophic and Junctional EB. Read more
The outcome of DEBRA's Extraordinary General Meeting, held on Saturday 9th April at 11am. Read more
DEBRA partners with eyesight charity Fight For Sight to fund grant to support early career research into EB eye-research. Read more
We're delighted to announce that our Sporting Celebrity Lunch, hosted by DEBRA Vice-President and international footballing legend, Graeme Souness, raised £30,000! Read more
Stuart Procter, Chief Operating Officer of The Stafford, London and Northcote hotel, Lancashire, joins DEBRA as new Vice President. Read more
DEBRA Football Legends Dinner, with Graeme Souness, raises a staggering £100,000 to help #FightEB. Read more
Starting on Rare Disease Day on the 28th February, we launched The DEBRA Effect across our retail stores in England and Scotland to raise awareness of EB. Read more
We extend our full support to all people from Ukraine living with EB who seek refuge in the UK and across Europe. Read more
Join us on the week starting the 28th February, as we launch The DEBRA Effect across our retail stores in England and Scotland. Read more
This will help DEBRA support the next generation of EB researchers and progress with our programme of world-class, innovative research into therapies and cure(s). Read more
On the 25th January 2022, life patron, Philip Evans was welcomed to DEBRA Head Office to meet our Senior Management Team and receive updates on some of the key developments in the charity’s progression. Read more
On the 13th January 2021, our CEO and Director of Research, Vice-President Graeme Souness and trustee Carly Fields were invited to visit the University of Birmingham Hospital and School of Dentistry. Read more
FALKLANDS WAR hero Simon Weston, CBE, raised £40,000 in a nail-biting play-off against some of Britain’s cleverest brains on ITV’s ‘Beat the Chasers’ to help people living with EB, a painful and rare skin condition. Read more
RIP Oliver Michael Thomas 1989-2021. After bravely battling EB all his life, and cancer for the last two years, Oliver passed away peacefully in his sleep, at home, on Tuesday afternoon (21 December). Read more