We'd like to say a huge congratulations to our DEBRA Ambassador, Lucy Beall, who is featured in the June/July edition of Cosmopolitan magazine! Read more
We're delighted to announce that our Dinner with Wine Tasting raised a fantastic £20,000! Read more
Amryt Pharma announces that the European Medicines Agency's (EMA) Committee for Medicinal Products for Human Use (CHMP) has adopted a positive opinion, recommending the approval of a new wound treatment for Dystrophic and Junctional EB. Read more
The outcome of DEBRA's Extraordinary General Meeting, held on Saturday 9th April at 11am. Read more
DEBRA partners with eyesight charity Fight For Sight to fund grant to support early career research into EB eye-research. Read more
We're delighted to announce that our Sporting Celebrity Lunch, hosted by DEBRA Vice-President and international footballing legend, Graeme Souness, raised £30,000! Read more
Stuart Procter, Chief Operating Officer of The Stafford, London and Northcote hotel, Lancashire, joins DEBRA as new Vice President. Read more
DEBRA Football Legends Dinner, with Graeme Souness, raises a staggering £100,000 to help #FightEB. Read more
Starting on Rare Disease Day on the 28th February, we launched The DEBRA Effect across our retail stores in England and Scotland to raise awareness of EB. Read more
We extend our full support to all people from Ukraine living with EB who seek refuge in the UK and across Europe. Read more
Join us on the week starting the 28th February, as we launch The DEBRA Effect across our retail stores in England and Scotland. Read more
This will help DEBRA support the next generation of EB researchers and progress with our programme of world-class, innovative research into therapies and cure(s). Read more
On the 25th January 2022, life patron, Philip Evans was welcomed to DEBRA Head Office to meet our Senior Management Team and receive updates on some of the key developments in the charity’s progression. Read more
On the 13th January 2021, our CEO and Director of Research, Vice-President Graeme Souness and trustee Carly Fields were invited to visit the University of Birmingham Hospital and School of Dentistry. Read more
FALKLANDS WAR hero Simon Weston, CBE, raised £40,000 in a nail-biting play-off against some of Britain’s cleverest brains on ITV’s ‘Beat the Chasers’ to help people living with EB, a painful and rare skin condition. Read more
RIP Oliver Michael Thomas 1989-2021. After bravely battling EB all his life, and cancer for the last two years, Oliver passed away peacefully in his sleep, at home, on Tuesday afternoon (21 December). Read more
The Guardian’s Skin Health Campaign, featuring DEBRA Director of Research, Dr Sagair Hussain, launched on 15 December raising awareness of skin health issues. Read more
At DEBRA's Sporting Legends Lunch in Prestonfield hosted by Graeme Souness, a song written after the death of three young girls with EB was formally released. Read more
We're delighted to announce that our annual Fight Night event has raised £80,000 to help #FightEB! Read more
We are delighted to announce that our Great Chefs Dinner 2021 raised an incredible £130,000, making it our most successful year yet! Read more
Philip Evans joined DEBRA following his daughter’s EB diagnosis. He was one of the key individuals at the outset who transformed DEBRA from a tiny charity to the [multi-million] charity it is today. Read more
DEBRA Member, Oliver Thomas, has shown remarkable bravery fighting EB throughout his 30 years. Read more
The DEBRA golf season got underway on 30 April and 12 May. 100 of our loyal supporters enjoyed the chilly winds but bright sunshine in Weybridge, Surrey. Read more
It’s #RareDiseaseDay2021 and we need your help to raise awareness of EB, because everyone matters. Read more