Lenore England visits DEBRA Greenwich store

We were delighted to welcome American philanthropist, Lenore England, to our Greenwich retail store. Read more

29 from AVEVA take on a group skydive, raising £11,708 to help #FightEB!

29 of the team from AVEVA took part in a group skydive at Sibson Aerodrome to raise money to #FightEB! Read more

Managing EB in a heatwave tips

Summer heat can be extremely challenging for people living with all types of EB and keeping cool is critical. Take a look at our top tips on managing EB in the heat. Read more

100km challenge is back for 2022!

Take part in our 100km challenge and help make a difference to people living with the painful genetic skin blistering condition, Epidermolysis Bullosa (EB). Read more

DEBRA writes to Health Secretary for Government Support

You can help us to raise awareness of EB and the need for additional funding to support drug repurposing. Read more

Mark Algar and Paul Buckworth complete 113km Ultramarathon to help #FightEB!

On the 18th June 2022, Mark Algar & Paul Buckworth took on an 113km Ultramarathon to help #FightEB. Read more

DEBRA Memory Makers campaign raises £55,119!

Our #DEBRAMemoryMakers campaign has raised an incredible £55,119.30 towards our DEBRA holiday homes! Read more

Lizzie Mounter on running the London Marathon with EB

Lizzie is a 29 Year Old filmmaker who has EB Simplex. In October she is running the London Marathon for DEBRA. Read more

DEBRA Celebrates National Volunteers' Week 2022

This week we are celebrating National Volunteers’ Week (1-7 June) and thanking all our amazing volunteers for the time they give to DEBRA. We couldn’t fight EB without them. Read more

Her Majesty the Queen's Platinum Jubilee

On behalf of everyone at DEBRA, we'd like to pass on our congratulations to Her Majesty The Queen on her Platinum Jubilee. Read more

DEBRA Members' Weekend 2022

DEBRA Members' Weekend is an opportunity for our Members to connect with others living with EB, share experiences, meet our community support, healthcare and research leads, and have fun! Read more

DEBRA writes to Sajid Javid for government support

You can help us to raise awareness of EB and the need for additional funding to support drug repurposing. Read more

DEBRA Dinner with Wine Tasting raises £20,000

We're delighted to announce that our Dinner with Wine Tasting raised a fantastic £20,000! Read more

CHMP adopts positive opinion for new wound treatment for Dystrophic and Junctional EB

Amryt Pharma announces that the European Medicines Agency's (EMA) Committee for Medicinal Products for Human Use (CHMP) has adopted a positive opinion, recommending the approval of a new wound treatment for Dystrophic and Junctional EB. Read more

Update from the Extraordinary General Meeting

The outcome of DEBRA's Extraordinary General Meeting, held on Saturday 9th April at 11am. Read more

DEBRA partners with Fight For Sight to fund grant into Epidermolysis Bullosa eye-research

DEBRA partners with eyesight charity Fight For Sight to fund grant to support early career research into EB eye-research. Read more

DEBRA Sporting Celebrity Lunch raises £30,000

We're delighted to announce that our Sporting Celebrity Lunch, hosted by DEBRA Vice-President and international footballing legend, Graeme Souness, raised £30,000! Read more

Stuart Procter joins DEBRA as new Vice President

Stuart Procter, Chief Operating Officer of The Stafford, London and Northcote hotel, Lancashire, joins DEBRA as new Vice President. Read more

DEBRA Football Legends Dinner raises £100,000

DEBRA Football Legends Dinner, with Graeme Souness, raises a staggering £100,000 to help #FightEB. Read more

The DEBRA effect launches in stores

Starting on Rare Disease Day on the 28th February, we launched The DEBRA Effect across our retail stores in England and Scotland to raise awareness of EB. Read more

DEBRA Effect campaign to launch in stores

Join us on the week starting the 28th February, as we launch The DEBRA Effect across our retail stores in England and Scotland. Read more