DEBRA UK event with Jason Robinson OBE raises over £35,000!

We are delighted to announce that our dinner with rugby legend Jason Robinson OBE raised an impressive over £35,000 for our BE the difference for EB appeal. Read more

Inspiring February fundraisers lift weights and cross bridges for EB awareness

Two fantastic fundraisers have taken place in February to help those living with EB and to kick start our 2024 appeal, ‘BE the difference for EB’. Read more

DEBRA UK launches 2024 events calendar!

We're thrilled to unveil our highly anticipated 2024 events calendar, encouraging supporters to actively get involved and make a meaningful impact on the lives of those affected by EB. Read more

Will you BE the difference?

Today (February 5) we launch our major new fundraising appeal for 2024, BE the difference for EB. Read more

DEBRA UK's January 2024 Impact newsletter

Discover the impact of supporters' generosity in our twice-yearly supporter newsletter. Read more

Emma Dodds becomes an ambassador for DEBRA UK

We are delighted to announce that Emma Dodds has agreed to become an ambassador for DEBRA UK. Read more

World renowned Chef, Michel Roux Jnr becomes a DEBRA UK ambassador

Michel has been a supporter of the charity for many years, which has included him hosting our annual Great Chefs Dinner. Read more

DEBRA meet with previous Parliamentary Under Secretary at the Department of Health, Lord O’Shaugnessy

The meeting was an opportunity to share with Lord O’Shaugnessy the progress we have made to date with our drug repurposing programme and some of the challenges we are facing. Read more

DEBRA Quarterly Update 2023 Q4

An update from our board of trustees, including key activities undertaken in the fourth quarter of 2023, and the progress we are making to #StopThePain of EB. Read more

DEBRA attends All Party Parliamentary Group on rare conditions at Westminster

As another indicator of the progress made this year in relation to raising awareness of EB and of DEBRA, we were really encouraged to be invited to a recent All Party Parliamentary Group on rare genetic and undiagnosed conditions. Read more

What a difference a ball of yarn can make

Throughout November, we held our first virtual knitting challenge, and non-physical virtual challenge of its kind. The DEBRA November knitting challenge asked participants to knit every day, to help raise funds to #StopThePain of EB. Read more

DEBRA meet with the new Minister of State for Health and Secondary Care, Andrew Stephenson CBE

We are very grateful to have been able to meet earlier today with Andrew Stephenson CBE, MP for Pendle and the new Minister of State for Heath and Secondary Care. Read more

DEBRA UK wraps up a phenomenal golf season and sets sights on a promising 2024

As the curtains draw on yet another successful DEBRA golf season, we celebrate the incredible support and enthusiasm of 900 golfers across 14 remarkable golf days in 2023. Read more

DEBRA raises £5 million to help stop the pain of EB

We're delighted to share with you the news that since we launched DEBRA’s A Life Free of Pain appeal, we have raised over £5m to help stop the pain of EB. Read more

DEBRA partners with Our Future Health

DEBRA is pleased to be partnering with Our Future Health, a new collaboration between the public, charities like DEBRA, and private sector organisations to build the UK’s largest health research programme. Read more

Dine with DEBRA lunch aboard the Fingal, Edinburgh raises £20,000

We’re thrilled to announce our dine with DEBRA lunch aboard the floating Fingal hotel in Edinburgh has raised £20,000 towards our A Life Free of Pain appeal. Read more

DEBRA Fight Night 2023, hosted by Frank Warren, raises over £180,000

We're delighted to announce that our annual Fight Night event has raised over £180,000 to help #FightEB, making it DEBRA's most successful Fight Night in 15 years! Read more

DEBRA SLT members meet with Jennie Minto and Bob Dorris at Scottish Parliament

We took a further step on our government campaigning journey today (Wednesday 22nd November) with a meeting held at the Scottish parliament with Jennie Minto MSP for Argyll and Bute and Minister for Public Health and Women's Health in Scotland, and our meeting sponsor, Bob Dorris, MSP for Glasgow Maryhill and Springburn. Read more

DEBRA SLT members meet with Michael Gove and James Sunderland at Westminster

Today (Tuesday 21st November), DEBRA CEO, Tony Byrne, along with our Director of Research, Dr Sagair Hussain, and Director of Fundraising, Hugh Thompson, met with Michael Gove, MP for Surrey Heath, and James Sunderland, MP for Bracknell, at Westminster. Read more

DEBRA members attend lunch with HRH The Duchess of Edinburgh at St. James's Palace

This week it was our pleasure to host a small group of DEBRA members who have worked with us this year, at a lunchtime event attended by our Royal Patron, HRH The Duchess of Edinburgh GCVO. Read more

EB Awareness Week 2023 TV and radio interviews

This EB Awareness Week, our President Simon Weston CBE, Vice-President Graeme Souness and Andy Grist have all been playing their part to continue raising awareness of EB, by making appearances on national TV and radio. Read more