Mark Algar and Paul Buckworth complete 113km Ultramarathon to help #FightEB!

On the 18th June 2022, Mark Algar & Paul Buckworth took on an 113km Ultramarathon to help #FightEB. Read more

DEBRA Memory Makers campaign raises £55,119!

Our #DEBRAMemoryMakers campaign has raised an incredible £55,119.30 towards our DEBRA holiday homes! Read more

Lizzie Mounter on running the London Marathon with EB

Lizzie is a 29 Year Old filmmaker who has EB Simplex. In October she is running the London Marathon for DEBRA. Read more

DEBRA Celebrates National Volunteers' Week 2022

This week we are celebrating National Volunteers’ Week (1-7 June) and thanking all our amazing volunteers for the time they give to DEBRA. We couldn’t fight EB without them. Read more

Her Majesty the Queen's Platinum Jubilee

On behalf of everyone at DEBRA, we'd like to pass on our congratulations to Her Majesty The Queen on her Platinum Jubilee. Read more

DEBRA Members' Weekend 2022

DEBRA Members' Weekend is an opportunity for our Members to connect with others living with EB, share experiences, meet our community support, healthcare and research leads, and have fun! Read more

DEBRA writes to Sajid Javid for government support

You can help us to raise awareness of EB and the need for additional funding to support drug repurposing. Read more

DEBRA Dinner with Wine Tasting raises £20,000

We're delighted to announce that our Dinner with Wine Tasting raised a fantastic £20,000! Read more

CHMP adopts positive opinion for new wound treatment for Dystrophic and Junctional EB

Amryt Pharma announces that the European Medicines Agency's (EMA) Committee for Medicinal Products for Human Use (CHMP) has adopted a positive opinion, recommending the approval of a new wound treatment for Dystrophic and Junctional EB. Read more

Update from the Extraordinary General Meeting

The outcome of DEBRA's Extraordinary General Meeting, held on Saturday 9th April at 11am. Read more

DEBRA partners with Fight For Sight to fund grant into Epidermolysis Bullosa eye-research

DEBRA partners with eyesight charity Fight For Sight to fund grant to support early career research into EB eye-research. Read more

DEBRA Sporting Celebrity Lunch raises £30,000

We're delighted to announce that our Sporting Celebrity Lunch, hosted by DEBRA Vice-President and international footballing legend, Graeme Souness, raised £30,000! Read more

Stuart Procter joins DEBRA as new Vice President

Stuart Procter, Chief Operating Officer of The Stafford, London and Northcote hotel, Lancashire, joins DEBRA as new Vice President. Read more

DEBRA Football Legends Dinner raises £100,000

DEBRA Football Legends Dinner, with Graeme Souness, raises a staggering £100,000 to help #FightEB. Read more

The DEBRA effect launches in stores

Starting on Rare Disease Day on the 28th February, we launched The DEBRA Effect across our retail stores in England and Scotland to raise awareness of EB. Read more

DEBRA Effect campaign to launch in stores

Join us on the week starting the 28th February, as we launch The DEBRA Effect across our retail stores in England and Scotland. Read more

One of 80 charities to receive support funding for early-career researchers

This will help DEBRA support the next generation of EB researchers and progress with our programme of world-class, innovative research into therapies and cure(s). Read more

Life Patron, Philip Evans welcomed to DEBRA Head Office

On the 25th January 2022, life patron, Philip Evans was welcomed to DEBRA Head Office to meet our Senior Management Team and receive updates on some of the key developments in the charity’s progression. Read more

DEBRA SMT welcomed to the University of Birmingham on research visit

On the 13th January 2021, our CEO and Director of Research, Vice-President Graeme Souness and trustee Carly Fields were invited to visit the University of Birmingham Hospital and School of Dentistry. Read more

Simon Weston raises £40,000 in thrilling chase to #FightEB

FALKLANDS WAR hero Simon Weston, CBE, raised £40,000 in a nail-biting play-off against some of Britain’s cleverest brains on ITV’s ‘Beat the Chasers’ to help people living with EB, a painful and rare skin condition. Read more

RIP Oliver Michael Thomas 1989-2021

RIP Oliver Michael Thomas 1989-2021. After bravely battling EB all his life, and cancer for the last two years, Oliver passed away peacefully in his sleep, at home, on Tuesday afternoon (21 December). Read more