Who we are Who we are For people whose skin doesn’t work – we do. DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal. DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had EB – the charity was the world’s first EB patient support group. Our vision We have a vision of a world where no one suffers from the painful genetic skin blistering condition, EB. We focus our work in two areas: We fund pioneering research to find effective treatments and, ultimately, a cure for EB. We provide care and support to improve the quality of life for individuals and families living with EB. Read more about our work and the principles that govern it in our Research and Care strategy.