Emergency information for EB patients

Emergency hospital sign In a medical emergency always call 999 or go to your nearest A&E. A medical emergency is when someone is seriously ill or injured or their life is at risk.

For urgent care (EB or non-EB related) - dial 111 or contact your GP. Always mention you have EB when speaking to healthcare professionals, even if the symptoms aren't related to your EB, so that they will be aware if they have to manage your care differently, e.g. avoiding sticky plasters or avoiding sliding when transferring you.

When face to face with healthcare professionals, it may be helpful to show your 'I have EB' card (download below) as this may help you get the best care. If additional specialist advice is required for your EB, a clinician may wish to contact your EB team or an on-call dermatologist.

'I have EB' cards

I have EB card pg 1 image I have EB card pg 2 image

'I have EB' cards are designed to alert others of your condition and to provide details of your specialist healthcare provider. These are particularly useful in case of emergency and can be carried with you.

Please download the relevant 'I have EB' card for your hospital below, the details of the hospital are pre-filled, or you can use the blank version to complete yourself. After a review, the blank version will best suit members who are cared for by regional EB healthcare teams and other local services around the UK. Please insert the relevant contact details that are specific to you.

You can print this out or save it as an image or file on your phone for emergencies.

Please contact the team at [email protected] to request a luggage tag version. These are reviewed and updated regularly so the luggage tag version may look different to the downloadable version. These will be updated when more stock is ordered.

Thank you for sending my ‘I have EB’ card. When I showed it at a recent medical appointment, he took my EB seriously. In all my life this is the first time this has happened.

Anon

For more information about the enhanced specialist EB healthcare available in the centres of excellence, please visit the specialist EB healthcare page. If you would like support with referrals or any further information, please get in touch with our Community Support Team.

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Find information about the EB research projects we currently fund.
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Take the opportunity to participate in an open water swimming festival at the famous Serpentine Lake in London's Hyde Park. Challenge yourself to a one mile, two mile or six mile swim.
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