As well as our DEBRA team raising awareness at events across the country on Rare Disease Day, DEBRA Vice-President, Graeme Souness, and DEBRA member, Lucy Beall, who lives with recessive dystrophic EB, were interviewed on various radio stations to drive awareness of EB and create support for our 2024 BE the difference for EB appeal.

Listen to the interviews below!



BBC 5 Live


BBC Radio Kent


BBC Radio Lancashire


Talking health network