DEBRA News: October 2020
EB Awareness Week: EB is family affair for 82 year old Terry Cook who has EB Simplex
31 October 2020
EB is family affair for 82 year old Terry Cook who has EB Simplex. Growing up in the 1920s with no NHS was difficult for Terry and his family to get a correct diagnosis with very little awareness of EB.
EB Awareness Week: Living with Dystrophic EB is an unimaginable roller coaster for 56 year old Leslie Paine
30 October 2020
Les shares his 'EB to me' story about growing up in the 1960s with EB.
EB Awareness Week: The Talbot Family's Story
28 October 2020
Life with EB – Karen and Simon Talbot talk about losing their son Dylan to Junctional EB aged 3 months and 1 day
New mouth spray could benefit patients with painful genetic skin condition
28 October 2020
A new spray for treating severely painful blisters, mouth ulceration and oral scarring in patients with a rare genetic skin condition is being developed by researchers at the University of Birmingham.
EB Awareness Week: Life with EB as a teen
26 October 2020
14 year-old Fazeel Irfan has Dystrophic EB (DEB) and discusses his mission to find a cure.
Make a difference
Please help us fund vital healthcare such as specialist EB nurses as well as research, care and life-changing support.