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DEBRA Member Myra Ali Shakes Her Beauty to #FightEB

1 March 2019

DEBRA Member Myra Ali, who has EB, recently filmed the mini documentary "Shake My Beauty" with Barcroft TV. Watch it here. 

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#ShowYourRare and #FightEB for Rare Disease Day

13 February 2019

Raise awareness of EB and show your support for the EB Community throughout February by posting a selfie on Twitter, Instagram and Facebook with the hashtags #FightEB and #ShowYourRare.

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President of DEBRA International and DEBRA UK’s Chair of Trustees, Mike Jaega, has sadly passed away

7 February 2019

It is with great sadness that we announce that Mike Jaega, President of DEBRA International and DEBRA UK’s Chair of Trustees, passed away yesterday, Wednesday, 6 February.

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Celebrating 2018's Fundraising Heroes: Community Support Manager Rowena Hamilton

31 December 2018

Community Support Manager Rowena Hamilton was inspired to trek the Sahara to fight EB – read her story

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Investing to #FightEB

19 December 2018

We’re delighted to be partnered with investment platform Greenfinch’s You Give We Give initiative to #FightEB.

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