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Home-schooling and EB

13 May 2020

Many families around the country are currently faced with the task of managing home-schooling, but what does this look like for an EB family? DEBRA Member and Trustee Carly has shared her experience of the ‘new normal’ and some tips for getting through the home-school day. 

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Mason White challenges the boxing community to help him raise funds for EB nurses

6 May 2020

Mason White, 11, isn't letting his EB get in the way of his determination to raise funds for the DEBRA funded EB nurses that make such a difference.

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Boost your immunity during the Covid-19 pandemic

6 May 2020

Lynne Hubbard, Principal Dietitian for adolescents and adults with EB working in partnership with DEBRA discusses ways to boost your immunity during the Covid-19 pandemic

 

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2.6 Challenge raises over £8,500 to support the EB Community

6 May 2020

A huge thank you to all of our fundraising heroes who took part in the 2.6 challenge, you have helped to raise £7,500 to support the EB Community.

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Spray-on Gene Therapy with RenovaCare SkinGun™ in New Study Underway at King’s College London

7 April 2020

RenovaCare Inc. have announced that the Company’s novel SkinGun™ is now being used to apply regenerative cells in a preclinical study of new gene therapies, underway at King’s College London.

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