You are here: News

International EB Awareness Week 2020

25 October 2020

Help us raise awareness of this devastating condition by joining us on social media and sharing our EB hero stories.

More details

DEBRA welcomes Interim CEO Tony Byrne

7 October 2020

Antony Byrne has been appointed as Interim CEO at DEBRA UK, the national charity supporting people suffering from Epidermolysis Bullosa (EB), a potentially fatal genetic skin condition that causes constant pain due to unstoppable internal and external blistering. Tony will begin his role on Monday 12th October.

More details

DEBRA Patron HRH The Countess of Wessex volunteers at Berkshire charity store

23 September 2020

DEBRA Patron HRH The Countess of Wessex has volunteered at the newly opened DEBRA store in Martins Heron, Bracknell, Berkshire to support the individuals and families living with the devasting skin condition Epidermolysis Bullosa (EB). 

More details

TV presenter Anthea Tuner opens news DEBRA store

22 September 2020

TV presenter Anthea Turner, The Worshipful the Mayor of the Borough of Bracknell Forest, Councillor Ash Merry and the Mayoress, Councillor Isabel Mattick opened a new DEBRA charity store yesterday in Martins Heron, Bracknell, Berkshire to raise vital funds to support individuals and families living with EB.

More details

DEBRA guest blog...Come on people, let's do this

21 September 2020

A beautifully written blog by Dom Holland, Founder of The Brothers Trust about Oliver Thomas and family's difficult journey with the painful skin blistering condition, EB.

More details

Make a difference

Make a difference

Please help us fund vital healthcare such as specialist EB nurses as well as research, care and life-changing support. 

Donate Today