DEBRA UK Vice President Graeme Souness CBE and Team DEBRA are back this September with another epic challenge to ‘BE the difference for EB. Read more
We are delighted to be able to count on the support of Scott Brown, the former Scotland international and Celtic FC midfielder as an official DEBRA UK Ambassador. Read more
An update from our board of trustees, including key activities undertaken in the second quarter of 2024, and the progress we are making to BE the difference for EB. Read more
Our EBS Impact Report summarises the many ways in which we support people with EBS today and the research projects we’re currently funding that could directly benefit the EBS community. Read more
DEBRA UK Director of Research, Dr Sagair Hussain, and Director of Member Services, Claire Mather both attended the British Association of Dermatologists (BAD) Annual Meeting in Manchester last week. Read more
We were delighted to receive confirmation today (Monday 8th July) that Filsuvez® has been accepted for use by NHS Scotland for EB patients aged 6 months and older. Read more
Now is a good opportunity to get your MP/MS/MSP's attention and ensure they are aware of EB and the challenges that people living with all types of EB face daily. Read more
Find out more about the impact we had in 2023, how we raised money, and what activities we spent money on in support of the UK EB community. Read more
We're lucky enough to have a group of wonderful supporters who help us raise awareness and funds for people living with EB. Here are just a few of our most recent fundraising heroes! Read more
We are delighted to hear that DEBRA UK Vice President, Graeme Souness has been awarded a CBE in His Majesty the King’s birthday honours list. Read more
To help guide any conversations you may have with election candidates in your constituency, we have listed our key local government asks for the general election on Thursday 4 July 2024. Read more
The outcomes of these research projects could improve the quality of life for people living with EB Read more
17 teams took part in our seventh team flurry sporting challenge on 23 May at the E.J. Churchill Shooting Grounds. Read more
Thank you to everyone who joined us at Members' Weekend 2024! It was a wonderful event and a great opportunity for our members to connect with others in the EB community. Read more
DEBRA UK is delighted to be an official sponsor of the Burma Skincare Initiative Spirit of Partnership Garden at this year’s RHS Chelsea Flower Show. Read more
This lunchtime (Friday 17th May) we were excited to open a brand-new store in Kirkintilloch. Read more
On Wednesday 8th May, DEBRA Royal Patron, HRH The Duchess of Edinburgh GCVO met more DEBRA UK members during an afternoon reception at The Beaumont Hotel in London. Read more
April was a busy month in Scotland for the fundraising team as we held two events for our BE the difference for EB appeal! Read more
We are back in Saltcoats and delighted to say hello in Trowbridge! Read more
Last Friday (26th April) our Royal Patron, HRH The Duchess of Edinburgh GCVO met with DEBRA UK members and supporters at an afternoon reception held at Greyfriars Hall part of the Virgin Hotel in Edinburgh. Read more
Craig Hamilton is gearing up for an extraordinary challenge on May 18th, as he sets out to walk the entire 84-mile length of Hadrian's Wall, barefoot. Read more
DEBRA UK member and ambassador, Lucy Beall Lott, Vice President, Graeme Souness, CEO, Tony Byrne, and Director of Research, Dr Sagair Hussain, held a panel discussion at the LifeArc Translational Science Summit at the Business Design Centre in London. Read more
DEBRA UK is pleased to announce a new long-term research partnership with the world-renowned Cancer Research UK (CRUK) Scotland Institute, formerly the Beatson Institute, in Glasgow, UK. Read more