Corporate partnerships play a vital role in the journey to #StopThePain of EB. A corporate partnership with DEBRA can be strategic and transformational for your company and DEBRA, engaging your workforce and helping your company achieve your ESG goals.
Together we can make today better for people living with EB and provide hope for a future free of pain.
Our 2024 appeal objective is to raise £5m to provide enhanced EB care and support for today, and effective drug treatments for all types of EB for tomorrow. With this funding we plan to:
- offer specialist mental health counselling and resources to the EB community.
- offer more financial grants to the EB community including funding for specialist products to alleviate EB symptoms, and grants and/or signposting to financial support available to ensure every member can attend their vital EB healthcare appointments.
- offer nationwide access to the DEBRA UK community support team including a programme of regional EB Connect events.
- continue to accelerate our drug repurposing programme as we seek to secure effective drug treatments for every type of EB.
"The worst thing about EB is the pain. The pain is incredible, it is everyday pain that does not go away. Then there’s the itch. Some days there is no itch and sometimes I have days where I just can’t stop itching. The scarring of my skin, the fusion of my fingers, and the depletion of my skin tissue will only increase as I get older which will make life more difficult for me. This is why I want effective drug treatments and ultimately a cure for EB."
Fazeel Irfan, 17Lives with recessive dystrophic epidermolysis bullosa (RDEB)
Corporate giving primarily will make a demonstrable, tangible difference by providing key funds for four areas that are vital to people living with EB.
Pioneering research to find effective treatments, including drug repurposing, and ultimately cure(s) for EB.
Care and support to improve the quality of life for individuals and families living with EB.
Through member access to heavily subsidised DEBRA holiday homes across the UK.
DEBRA funds EB partnerships with the NHS.
We live in an era of enormous scientific and medical innovation, which has created real opportunity for breakthroughs in EB research into future treatments, but these treatments are needed now; patients living with EB can’t wait, they need effective control of symptoms, better quality of life, and real hope that a cure will be found soon. With your help we can accelerate the pace and breadth of our research into treatments and together we can achieve this ambitious and essential journey to change lives and end suffering. Tony Byrne, CEO DEBRA UK
We live in an era of enormous scientific and medical innovation, which has created real opportunity for breakthroughs in EB research into future treatments, but these treatments are needed now; patients living with EB can’t wait, they need effective control of symptoms, better quality of life, and real hope that a cure will be found soon. With your help we can accelerate the pace and breadth of our research into treatments and together we can achieve this ambitious and essential journey to change lives and end suffering.
Tony Byrne, CEO DEBRA UK
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