On Tuesday evening (17th September), we took another step on our government campaigning journey with a reception held at the Scottish Parliament in Holyrood, Edinburgh. Read more
Earlier this week we exhibited at the Liberal Democrats Autumn Conference in Brighton. During the two days we were there we engaged with several MPs and members of the party whom we will follow up with to request their support. Read more
On Tuesday 3rd September, dedicated DEBRA UK supporters Paul Glover and Martyn Rowley were welcomed to DEBRA UK's head office to celebrate their outstanding achievement of raising £115,000 in 2024 to support those living with EB. Read more
On 21st August 2024, DEBRA Vice-President Graeme Souness CBE and Isla Grist, who lives with recessive dystrophic EB (RDEB), appeared on BBC Breakfast again. Read more
We are delighted to announce that 'Albi's Butterfly Ball', which took place on Friday 16th August at Coed y Mwstwr Hotel in Bridgend, has raised an incredible £42,000 for DEBRA. Read more
On Friday 16th August we were delighted to open another new store in South Queensferry, Edinburgh. Our second opening of the day, our new Guildford store having opened earlier that morning! Read more
Today (Friday 16 August) we were delighted to open another new store in Guildford, Surrey. Read more
We are delighted to be able to announce another new DEBRA UK ambassador, with Simon Davies the latest to join Team DEBRA! Read more
We're lucky enough to have a group of wonderful supporters who help us raise awareness and funds for people living with EB. Here are just a few of our most recent fundraising heroes! Read more
We are delighted to announce that Mark Moring has agreed to become our newest DEBRA UK ambassador. Read more
On Friday 19th July, friends of DEBRA UK including Trustee Mick Thomas and his wife Sarah celebrated what would have been their son Oliver’s 35th birthday. Read more
Since their interview on BBC Breakfast, Graeme and Isla have been doing the rounds on radio and tv channels to raise awareness of EB and the team's challenge. Read more
Impact is DEBRA UK's twice-yearly supporter newsletter. In this edition, find out about the positive impact our supporters' generosity has had on the EB community during the first half of 2024. Read more
DEBRA UK Vice President Graeme Souness CBE and Team DEBRA are back this September with another epic challenge to ‘BE the difference for EB. Read more
We are delighted to be able to count on the support of Scott Brown, the former Scotland international and Celtic FC midfielder as an official DEBRA UK Ambassador. Read more
An update from our board of trustees, including key activities undertaken in the second quarter of 2024, and the progress we are making to BE the difference for EB. Read more
Our EBS Impact Report summarises the many ways in which we support people with EBS today and the research projects we’re currently funding that could directly benefit the EBS community. Read more
DEBRA UK Director of Research, Dr Sagair Hussain, and Director of Member Services, Claire Mather both attended the British Association of Dermatologists (BAD) Annual Meeting in Manchester last week. Read more
We were delighted to receive confirmation today (Monday 8th July) that Filsuvez® has been accepted for use by NHS Scotland for EB patients aged 6 months and older. Read more
Now is a good opportunity to get your MP/MS/MSP's attention and ensure they are aware of EB and the challenges that people living with all types of EB face daily. Read more
Find out more about the impact we had in 2023, how we raised money, and what activities we spent money on in support of the UK EB community. Read more
We are delighted to hear that DEBRA UK Vice President, Graeme Souness has been awarded a CBE in His Majesty the King’s birthday honours list. Read more
To help guide any conversations you may have with election candidates in your constituency, we have listed our key local government asks for the general election on Thursday 4 July 2024. Read more