Thank you to everyone who came to our annual members’ weekend at Drayton Manor in May. As always, it was wonderful to be able to connect as a community, meet old friends and new, share experiences, enjoy workshops and presentations, take part in activities, and have fun.
We would love to hear any feedback to help our planning for next year's Members' Weekend. Please contact [email protected] with your ideas and suggestions.
Thank you to all of our members, adults and children with all types of EB, who travelled from across the UK to join us, and to the healthcare professionals, researchers, speakers and workshop leaders, our generous sponsors (Bullens, Flen Health, Molnlyke, Urgo and Rheacell) and our staff, trustees and volunteers who made it happen.
We absolutely loved our first members event.
So lovely to see so many EB families together.
From a parent’s point of view, it’s really nice to discuss how hard it is, because in our normal lives no one truly understands.
Take a look at the video and some of the photos captured on the day! Read more
Take a look at a few of the fantastic presentations we had at Members' Weekend 2023, including eating well and movement in water from EB specialists. Read more
Thank you to our generous sponsors who made Members' Weekend 2023 possible. Read more