Our DEBRA Members' Weekend is so important as it enables our Members to connect with others living with EB, helps people who may feel isolated and gives an opportunity to share and learn from one another, as well as meet community support, healthcare and research leads and have fun.


You told us, we listened!

From research and healthcare presentations to mousse-making and EB stories, information zones and friendly table talks, a gaming bus, steel band sessions, evening fun and entertainment and more – there was something for everyone.

The feedback you gave us helped make this year’s event so successful. We created a daytime vibe with new entertainment and more activities for older children and adult members with a more relaxed programme that gave more time to socialise and connect. And trialling the wireless headphones proved very popular!


Here's a look at what happened on the day!