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  1. Get involved
  2. Donate
  3. Leave a legacy

Leave a legacy

Leaving a legacy

Leave a gift in your Will

Leaving a gift in your will is another simple, but vital way to #FightEB as we advance towards a cure.

Since 1978 bequests from generous supporters have made life changing differences to the entire EB Community. To date, over £20 million has been invested in innovative research projects to develop effective treatments and a cure for EB. 

Your bequest will help us plan with certainty for the future, so we can beat EB together.

Any gift, no matter how big or small, will help make sure DEBRA is there to provide care and support to people living with EB and fund research until a cure is found. 

Why make a will?

With a will, you can make it clear what you want to happen to your money and possessions after you pass away. You can also nominate guardians for dependants under the age of 18 and make your wishes about specific funeral arrangements known. If you die without making a will, you will be classed as dying ‘intestate’ and the people close to you may receive nothing.

Your friends and family come first when making a will – we’re very grateful to anyone who considers leaving a gift to DEBRA after making provision for loved ones.

Our promise to you

  • We recognise that your loved ones come first in your Will
  • We will never ask you about the size or type of bequest because every gift makes a difference
  • We understand that you may need to update your Will if your circumstances change
  • We promise to use your gift wisely, in line with your wishes

If you would like to speak about leaving a gift to DEBRA in your Will or would like more information, please get in touch with our fundraising team - 01344 771961, [email protected]

Why I'm leaving a gift

Why I'm leaving a gift

I have benefited financially, emotionally and physically from help with my EB from DEBRA. I cannot now imagine a life without DEBRA and I know my legacy will be used to fund research into a cure and help people living with EB. Read more

Published: 30th July, 2020

Updated: 25th January, 2022

Author:

Make a free Will

Make a free Will

We're delighted to have partnered with three suppliers to offer our supporters the chance to make a free Will. Read more

Published: 17th February, 2021

Updated: 25th January, 2022

Author: Dana Ingabire

Wills FAQs

Wills FAQs

Having a valid and up to date Will gives you peace of mind. It means you can make your wishes clear and prevents putting your loved ones under unnecessary stress after your die. Read more

Published: 23rd November, 2021

Updated: 25th January, 2022

Author: Kat Heppinstall

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  • Current projects

    Current projects

    Find information about the EB research projects we currently fund.

  • Swim Serpentine 2022

    Swim Serpentine 2022

    Take the opportunity to participate in an open water swimming festival at the famous Serpentine Lake in London's Hyde Park. Challenge yourself to a one mile, two mile or six mile swim.

  • Bath Half Marathon 2023

    Bath Half Marathon 2023

    Join #TeamDEBRA and take on this challenge through the beautiful city of Bath. We will support you every step of the way.

Most read

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Contact Us

  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

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DEBRA is registered as a Charity in England and Wales (1084958) and Scotland (SC039654).

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