What I hope for EB research is to make what was once impossible, possible. I want a brighter future for Isla; I want a cure to happen in her lifetime.

- Andy & Isla, DEBRA Members

Our research impact report

Here at DEBRA UK, Andy & Isla's goals are also our goals. By downloading your own copy of the DEBRA UK Research Impact Report 2021, you can become familiar with the impact of Epidermolysis Bullosa (EB) on the lives of thousands of UK children, men and women as EB researchers strive to find a cure.

Discover:

• The scope of people affected by this debilitating skin disease;
• Our positive outlook on a future free from EB;
• Specialist healthcare and services available to EB patients and families;
• Commitment to quality research on behalf of EB patients and families;
• And much more! 

DOWNLOAD THE 2021 REPORT

 

How will I know whether the research DEBRA UK is funding will help me and other members?

Scientists, doctors and nurses do their best to find treatments and compare them to each other to find out what works best; but some studies are better than others. We ask EB expert researchers and people living with EB to help us choose which research studies to fund. We can get an idea of how good a specific study is by asking questions like:

• How many people are in the study?
• Is the study randomised?
• Is the study double-blind?
• What will the results of the study tell us?
• How long will it take to complete the study?
• Has this been studied before?

 

We'd love to hear from you!

We want to hear the voices of families living with EB to help us decide which research projects to fund.

If you would like to let us know your thoughts about our research or would be happy for us to contact you to ask for your opinion on what research we fund, please leave your details here.