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Research Strategy

We are the largest UK funder of EB research. We have invested over £20m and have been responsible, through funding pioneering research and working internationally, for establishing much of what is now known about EB.

This is our first research strategy to focus on impact and on what matters to people living with EB. Our ambition is to find and fund treatments to lessen the day-to-day impact of EB, and cures to eradicate EB.

Our new strategy puts patient outputs front and centre, with a focus on translational research that will have a positive impact on those with EB today. We will fund science of the highest quality across the world that has the potential to deliver for EB patients.

Our four overarching research priorities are those we view most likely to deliver outputs for people living with EB. They are:

  • invest in drug re-purposing and develop drug discovery programmes to accelerate finding treatments
  • increase investment in patient-centred research themes
  • continue to invest to understand better the causes and progression of EB and the role of the immune system
  • invest heavily in the next generation of EB researchers.

We are calling on the scientific community, funders and our industry partners to come and join us on this journey to accelerate EB research innovation.

EB Research Strategy Diagram

Applications are welcome from all disciplines committed to improving the lives of people with EB.

Contact [email protected].

Read the full strategy here

Published: 4th March, 2022

Updated: 13th May, 2022

Author: Tom Marshall

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  • Current projects

    Current projects

    Find information about the EB research projects we currently fund.

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    Swim Serpentine 2022

    Take the opportunity to participate in an open water swimming festival at the famous Serpentine Lake in London's Hyde Park. Challenge yourself to a one mile, two mile or six mile swim.

  • Bath Half Marathon 2023

    Bath Half Marathon 2023

    Join #TeamDEBRA and take on this challenge through the beautiful city of Bath. We will support you every step of the way.

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  • Current projects

    Current projects

    Find information about the EB research projects we currently fund.

  • Get involved in DEBRA UK's research

    Get involved in DEBRA UK's research

    You can become more involved in DEBRA UK and the research we fund in several ways.

  • How long does EB research take?

    How long does EB research take?

    Our long-term goal is to achieve a world where no one suffers with EB but this will be fought in many smaller battles.

  • Our research impact

    Our research impact

    Our ambition is to find and fund treatment(s) to lessen the day-to-day impact of EB and cures to eradicate EB.

  • What is scientific research on EB?

    What is scientific research on EB?

    Scientific research is the best way we can try to find out what can make a difference to the symptoms of EB.

  • What type of research does DEBRA UK fund?

    What type of research does DEBRA UK fund?

    To decide which research projects should be funded by DEBRA UK, we have four areas that we think will be most likely to help families suffering with EB.

  • Apply for funding

    Apply for funding

    DEBRA UK provides scientific or medical research funding opportunities in any field relevant to the many symptoms of EB.

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  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

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  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

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