Clinical trials may not be suitable for everyone and can only be joined through your specialist doctor. Read more
Therapies work in different ways to reduce the symptoms of EB. Read more
Clinical trials provide evidence for the best ways to understand and treat symptoms of EB. Read more
How scientific research provides evidence to support licensing of treatments for EB. Read more
EB is a 'rare disease'. This means that fewer than 1 in 2000 people will suffer with it. Read more
How new medicines are licensed and become available to patients through the NHS. Read more
Knowing a bit more about the science behind EB research can help to understand the research that we are funding and how it might affect DEBRA UK members. Read more
Our glossary explains the meanings of some words EB researchers may use. Read more