As part of our new member engagement project, DEBRA has been hosting online member get-togethers over Zoom.

These are informal meetings for individuals with EB and EB family members. They are guided by someone at DEBRA and are a chance for members to chat with others experiencing similar difficulties, or just to get some safe social time with others, plus it's your chance to help shape future online events for members.

If we can’t have a Members’ Weekend, this is as good as it gets, just doing these [Zoom calls] even once a month and asking each other questions is great.

DEBRA member

It’s great for my daughter to be able to hear how well someone else with EB like her is doing.

DEBRA member

These groups are a safe space and place to speak freely and to feel vulnerable.

DEBRA member

It’s really good to stay connected, even if we’ve never seen each other before.

DEBRA member

It is very hard at the moment. I thought this morning I wish we had zoom every day! I do tai chi and two church services and coffee mornings but they don’t lift me like DEBRA Zoom. I lose myself laughing.

DEBRA member

 

Get in touch and join in

We will update this section with details of the next event soon.

If you have questions, would like to join or get help getting set up, please contact Karen Thackray on 01344 771961 (Option 1) or via [email protected]

 

Getting set up before the meeting