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Purple pics #FightEB on Rare Disease Day!

Purple pics #FightEB on Rare Disease Day!

This Rare Disease Day, 28 February 2018, we asked everyone to raise awareness of EB and make a difference to EB Community by wearing something purple and putting a pound in the pot at

Thank you for getting involved. People from all over the UK showed their support, sharing their pics on social media with the hashtag #FightEB. Here’s a roundup of our favourite pics from the day.

Together we #FightEB, together we will beat EB.

Specialist EB nurses and DEBRA EB Community Support Managers teamed up to raise EB awareness during Rare Disease Day celebrations at St. Thomas’ Hospital in London (pictured above).

And you wore your purple in the snow…

Wearing purple in the snow

At the gym…

Wearing purple to #FightEB in the gym

At work…

Wear purple to #FightEB at work

In community clubs…

Wear purple in community clubs

And on holiday…

Thank you! Every time you tweet or post about EB, you help to spread EB awareness a little bit further and make EB well known around the world.

It’s not too late to get involved – help top up our target by donating at and carry on sharing your purple pics on Twitter, Facebook and Instagram or email them to us at

And if you’d like one of our purple t-shirts to wear please contact us.


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