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  1. EB Research

EB research

DEBRA UK is the largest UK funder of Epidermolysis Bullosa (EB) research. We have invested over £20m and have been responsible, through funding pioneering research and working internationally, for establishing much of what is now known about EB.

We have a vision of a world where no one suffers from the painful skin condition Epidermolysis Bullosa (EB). Our research strategy focuses on what matters to people living with EB. Our ambition is to find treatments to lessen the day-to-day impact of EB, and cures to eradicate EB. We will fund science of the highest quality across the world that has the potential to deliver for EB patients.

Together we fight EB, together we will beat EB.

Our research projects

Our research projects

Learn more about EB research and the current projects we’re funding. Read more

Published: 11th February, 2022

Updated: 17th October, 2023

Author: Luis Calvo Ramos

Our research strategy

Our research strategy

Our ambition is to find and fund treatments to lessen the day-to-day impact of EB and cures to eradicate EB. Read more

Published: 4th March, 2022

Updated: 16th October, 2023

Author: Tom Marshall

Our research impact

Our research impact

We have been responsible, through funding life changing research, for establishing much of what is now known about EB. Read more

Published: 11th March, 2022

Updated: 1st August, 2023

Author: Tilda Kusmishko

Apply for research funding

Apply for research funding

DEBRA UK provides scientific or medical research funding opportunities in any field relevant to the many symptoms of EB. Read more

Published: 13th June, 2022

Updated: 3rd November, 2022

Author: Tilda Kusmishko

How we fund research

How we fund research

How DEBRA UK decides which EB research projects to fund. Read more

Published: 30th June, 2022

Updated: 14th November, 2023

Author: Tilda Kusmishko

Scientific Grants Advisory Panel

Scientific Grants Advisory Panel

Our panel of experts provides reviews and recommendations about the research projects we fund. Read more

Published: 3rd July, 2022

Updated: 22nd September, 2023

Author: Abigail Witherden

Research involvement

Research involvement

Whether it’s helping decide what research to fund next, or joining a patient panel for a new research project, you can use your experience to help us as we search for treatments and cures. Read more

Published: 5th July, 2022

Updated: 21st June, 2023

Author: Tilda Kusmishko

Drug repurposing

Drug repurposing

We are prioritising investment in drug repurposing to accelerate research progress and find life-changing treatments for EB. Read more

Published: 9th July, 2022

Updated: 7th August, 2023

Author: Tilda Kusmishko

Potential treatments

Potential treatments

DEBRA’s ‘A Life Free of Pain’ appeal aims to accelerate its drug-repurposing programme and fund treatments to radically improve quality of life for people living with the painful genetic skin blistering condition EB. Read more

Published: 11th July, 2022

Updated: 7th August, 2023

Author:

Research blogs, podcasts and videos

Research blogs, podcasts and videos

Updates from our researchers and medical experts and links to video and audio resources. Read more

Published: 11th August, 2022

Updated: 31st October, 2023

Author: Tilda Kusmishko

Research resources and information

Research resources and information

Find resources and information on the role of research to find treatments to lessen the day-to-day impact of EB, and cures to eradicate EB. Read more

Published: 16th October, 2022

Updated: 30th October, 2023

Author: Wendy Garstin

DEBRA research news

DEBRA research news

Find out what's new with our DEBRA-funded research projects. Read more

Published: 8th March, 2023

Updated: 30th October, 2023

Author: Tilda Kusmishko

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Latest

  • DEBRA raises £5 million to help stop the pain of EB

    DEBRA raises £5 million to help stop the pain of EB

    We're delighted to share with you the news that since we launched DEBRA’s A Life Free of Pain appeal, we have raised over £5m to help stop the pain of EB.

  • How and why had this condition suddenly invaded my family without warning?

    How and why had this condition suddenly invaded my family without warning?

    I had never heard of EB before and I naively thought the blisters which were appearing on Georgia’s tiny body would heal - but when a doctor explained the full extent of EB to me I found the horror difficult to comprehend.

  • Parent Pitstop: March 2024

    Parent Pitstop: March 2024

    Parent Pitstops are an opportunity to connect with other members online. We will update this page with more details about our March event soon.

  • Parent Pitstop: January 2024

    Parent Pitstop: January 2024

    Parent Pitstops are an opportunity to connect with other members online. We will update this page with more details about our January event soon.

Most read

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Graeme Souness swimming the English Channel  to raise £1.1m to stop the pain of EB

    Graeme Souness swimming the English Channel to raise £1.1m to stop the pain of EB

    Graeme Souness, ex-international footballer, manager, and pundit, is swimming the English Channel this June to raise £1.1m to stop the pain of epidermolysis bullosa (EB).

  • What is EB?

    What is EB?

    Epidermolysis bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Contact Us

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Imagine your skin being in constant pain? No one should have to live like this

    Imagine your skin being in constant pain? No one should have to live like this

    Imagine a dozen surgeries in less than a decade? No one should have to live like this. Please help us find treatments to #StopThePain.

  • Become a member

    Become a member

    If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.

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