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  1. Our research

EB research

We have a vision of a world where no one suffers from the painful skin condition Epidermolysis Bullosa (EB). Our research strategy focuses on what matters to people living with EB. Our ambition is to find treatments to lessen the day-to-day impact of EB, and cures to eradicate EB. We will fund science of the highest quality across the world that has the potential to deliver for EB patients.

DEBRA UK is the largest UK funder of EB research. We have invested over £20m and have been responsible, through funding pioneering research and working internationally, for establishing much of what is now known about EB.

Together we fight EB, together we will beat EB.

The devastating nature of EB drives our determination to do more than we have ever done to achieve our vision and end the suffering that EB brings. We are calling on the scientific community, funders and our industry partners to come and join us on this journey. We will drive a programme of world-class, innovative and collaborative research that will bring hope and improved outcomes for everyone living with EB.

Dr Sagair Hussain, DEBRA Director of Research

Research strategy

Research strategy

Our ambition is to find and fund treatment(s) to lessen the day-to-day impact of EB, and cures to eradicate EB. Read more

Published: 4th March, 2022

Updated: 22nd June, 2022

Author: Tom Marshall

Research impact

Research impact

We have been responsible, through funding life changing research, for establishing much of what is now known about EB. Read more

Published: 12th May, 2022

Updated: 1st July, 2022

Author: Tilda Kusmishko

Scientific research and clinical trials

Scientific research and clinical trials

Scientific research and clinical trials are the best way to understand and treat symptoms of EB Read more

Published: 12th May, 2022

Updated: 16th June, 2022

Author: Tilda Kusmishko

Get involved in research

Get involved in research

You can become more involved in DEBRA UK and the research we fund in several ways. Read more

Published: 13th May, 2022

Updated: 16th June, 2022

Author: Tilda Kusmishko

Current projects

Current projects

Find information about the EB research projects we currently fund. Read more

Published: 24th May, 2022

Author: Luis Calvo

Apply for research funding

Apply for research funding

DEBRA UK provides scientific or medical research funding opportunities in any field relevant to the many symptoms of EB. Read more

Published: 13th June, 2022

Author: Tilda Kusmishko

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Showing 10 of 6

Latest

  • Filsuvez® gel approved for use in the EU

    Filsuvez® gel approved for use in the EU

    The UK is a step closer to having the first approved treatment for EB patients.

  • Mark Algar and Paul Buckworth complete 113km Ultramarathon to help #FightEB!

    Mark Algar and Paul Buckworth complete 113km Ultramarathon to help #FightEB!

    On the 18th June 2022, Mark Algar & Paul Buckworth took on an 113km Ultramarathon to help #FightEB.

  • Leave a legacy

    Leave a legacy

    Leaving a gift in your will is a simple but vital way to help make sure DEBRA is there to provide care and support to people living with EB and fund life changing research.

  • DEBRA Memory Makers campaign raises £55,119!

    DEBRA Memory Makers campaign raises £55,119!

    Our #DEBRAMemoryMakers campaign has raised an incredible £55,119.30 towards our DEBRA holiday homes!

Most read

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Contact Us

  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

  • Greenwich

    Greenwich

    17/23 Woolwich Road, Greenwich, London, SE10 0RA
    Tel: 0208 858 5194
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