DEBRA UK is the largest UK funder of Epidermolysis Bullosa (EB) research. We have invested over £20m and have been responsible, through funding pioneering research and working internationally, for establishing much of what is now known about EB.
We have a vision of a world where no one suffers from the painful skin condition Epidermolysis Bullosa (EB). Our research strategy focuses on what matters to people living with EB. Our ambition is to find treatments to lessen the day-to-day impact of EB, and cures to eradicate EB. We will fund science of the highest quality across the world that has the potential to deliver for EB patients.
Together we fight EB, together we will beat EB.
Learn more about EB research and the current projects we’re funding. Read more
Our ambition is to find and fund treatments to lessen the day-to-day impact of EB and cures to eradicate EB. Read more
We have been responsible, through funding life changing research, for establishing much of what is now known about EB. Read more
DEBRA UK provides scientific or medical research funding opportunities in any field relevant to the many symptoms of EB. Read more
How DEBRA UK decides which EB research projects to fund. Read more
Our panel of experts provides reviews and recommendations about the research projects we fund. Read more
Whether it’s helping decide what research to fund next, or joining a patient panel for a new research project, you can use your experience to help us as we search for treatments and cures. Read more
We are prioritising investment in drug repurposing to accelerate research progress and find life-changing treatments for EB. Read more
DEBRA’s ‘A Life Free of Pain’ appeal aims to accelerate its drug-repurposing programme and fund treatments to radically improve quality of life for people living with the painful genetic skin blistering condition EB. Read more
Updates from our researchers and medical experts and links to video and audio resources. Read more
Find resources and information on the role of research to find treatments to lessen the day-to-day impact of EB, and cures to eradicate EB. Read more
Find out what's new with our DEBRA-funded research projects. Read more