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  1. Our research

EB research

We have a vision of a world where no one suffers from the painful skin condition Epidermolysis Bullosa (EB). Our research strategy focuses on what matters to people living with EB. Our ambition is to find treatments to lessen the day-to-day impact of EB, and cures to eradicate EB. We will fund science of the highest quality across the world that has the potential to deliver for EB patients.

DEBRA UK is the largest UK funder of EB research. We have invested over £20m and have been responsible, through funding pioneering research and working internationally, for establishing much of what is now known about EB.

Together we fight EB, together we will beat EB.

The devastating nature of EB drives our determination to do more than we have ever done to achieve our vision and end the suffering that EB brings. We are calling on the scientific community, funders and our industry partners to come and join us on this journey. We will drive a programme of world-class, innovative and collaborative research that will bring hope and improved outcomes for everyone living with EB.

Dr Sagair Hussain Director of Research, DEBRA UK

Research Strategy

Research Strategy

Our ambition is to find and fund treatments to lessen the day-to-day impact of EB, and cures to eradicate EB. Read more

Published: 4th March, 2022

Updated: 13th May, 2022

Author: Tom Marshall

Apply for funding

Apply for funding

DEBRA UK provides scientific or medical research funding opportunities in any field relevant to the many symptoms of EB. Read more

Published: 25th April, 2022

Updated: 13th May, 2022

Author: Luis Calvo

What type of research does DEBRA UK fund?

What type of research does DEBRA UK fund?

To decide which research projects should be funded by DEBRA UK, we have four areas that we think will be most likely to help families suffering with EB. Read more

Published: 11th May, 2022

Updated: 24th May, 2022

Author: Tilda Kusmishko

How long does EB research take?

How long does EB research take?

Our long-term goal is to achieve a world where no one suffers with EB but this will be fought in many smaller battles. Read more

Published: 12th May, 2022

Updated: 13th May, 2022

Author: Tilda Kusmishko

Our research impact

Our research impact

Our ambition is to find and fund treatment(s) to lessen the day-to-day impact of EB and cures to eradicate EB. Read more

Published: 12th May, 2022

Updated: 13th May, 2022

Author: Tilda Kusmishko

What is scientific research on EB?

What is scientific research on EB?

Scientific research is the best way we can try to find out what can make a difference to the symptoms of EB. Read more

Published: 12th May, 2022

Updated: 24th May, 2022

Author: Tilda Kusmishko

Get involved in DEBRA UK's research

Get involved in DEBRA UK's research

You can become more involved in DEBRA UK and the research we fund in several ways. Read more

Published: 13th May, 2022

Author: Tilda Kusmishko

Current projects

Current projects

Find information about the EB research projects we currently fund. Read more

Published: 24th May, 2022

Author: Luis Calvo

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  • Current projects

    Current projects

    Find information about the EB research projects we currently fund.

  • Swim Serpentine 2022

    Swim Serpentine 2022

    Take the opportunity to participate in an open water swimming festival at the famous Serpentine Lake in London's Hyde Park. Challenge yourself to a one mile, two mile or six mile swim.

  • Bath Half Marathon 2023

    Bath Half Marathon 2023

    Join #TeamDEBRA and take on this challenge through the beautiful city of Bath. We will support you every step of the way.

Most read

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Contact Us

  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

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