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  1. Home
  2. Learning & education

Learning & education

People living with EB may require support in their educational journey, as well as an understanding of EB by their schools and peers. The information included in this section aims to give an overview of options for people living with EB, as well as serve as a resource for educational settings to learn more about and better understand EB.

More information will be added as it's developed. Until then, or to talk through any of the information and how it relates to your individual situation, please contact your DEBRA EB Community Support Manager for assistance.

Starting school

Starting school

Starting school is a milestone moment but you may worry about how your child can be kept safe in a school environment. Find out more about starting school with EB. Read more

Published: 26th October, 2021

Updated: 26th September, 2022

Author: Kat Heppinstall

Support at school

Support at school

The level of support that your child or young person requires is not dependent on their EB type but on how it impacts them and their learning. Find out more about support at school for students with EB. Read more

Published: 26th October, 2021

Updated: 26th September, 2022

Author: Kat Heppinstall

Friends, confidence and bullying

Friends, confidence and bullying

Sometimes, worrying about how you look or how other people might act can affect how you feel about yourself. Find out more about making friends, building confidence and dealing with bullying with EB. Read more

Published: 26th October, 2021

Updated: 26th September, 2022

Author: Kat Heppinstall

Going to secondary school

Going to secondary school

Going to secondary school is a milestone for every young person as they transition from being the oldest in the school to the youngest in a new environment and amongst new friends. Find out more about going to secondary school with EB. Read more

Published: 26th October, 2021

Updated: 26th September, 2022

Author: Kat Heppinstall

College and independence

College and independence

As well as being an exciting time for many, living with EB and starting sixth form or college may also present challenges that other teenagers don’t need to think about. Find out more about going to college and independence with EB. Read more

Published: 26th October, 2021

Updated: 26th September, 2022

Author: Kat Heppinstall

Preparing for university

Preparing for university

University can be an exciting time, but you might also feel overwhelmed at the thought of being away from home or having to cope with new challenges. Find out more about preparing for university with EB. Read more

Published: 26th October, 2021

Updated: 26th September, 2022

Author: Kat Heppinstall

Member tips, stories and more

Member tips, stories and more

We asked Members to tell their experiences of what life has been like living with EB and going through school – from primary through to university. Read more

Published: 26th October, 2021

Updated: 26th September, 2022

Author: Kat Heppinstall

Guide for schools & teachers: Supporting a child living with EB

Guide for schools & teachers: Supporting a child living with EB

Attending school is a huge part of a child’s life. It provides structure and stability, as well as helping children develop crucial social, emotional and behavioural skills. Find out more about how schools and teachers can support a child living with EB. Read more

Published: 26th October, 2021

Updated: 5th October, 2022

Author: Kat Heppinstall

FAQs in education

FAQs in education

Based on our discussions with people living with EB and their families, we have put together a list of frequently asked questions in education for living with EB. Read more

Published: 26th October, 2021

Updated: 26th September, 2022

Author: Kat Heppinstall

Education resources & toolkit

Education resources & toolkit

If you're struggling and need support, our DEBRA EB Community Support Team are here to help Read more

Published: 26th October, 2021

Updated: 26th September, 2022

Author: Kat Heppinstall

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Latest

  • Dine with DEBRA lunch aboard the Fingal, Edinburgh raises £20,000

    Dine with DEBRA lunch aboard the Fingal, Edinburgh raises £20,000

    We’re thrilled to announce our dine with DEBRA lunch aboard the floating Fingal hotel in Edinburgh has raised £20,000 towards our A Life Free of Pain appeal.

  • Your feedback is vital

    Your feedback is vital

    We welcome your feedback. Please let us know if you have any suggestions for improvements to our EB information. We’d also love to hear from you if you think we are doing something well.

  • DEBRA Fight Night 2023, hosted by Frank Warren, raises over £180,000

    DEBRA Fight Night 2023, hosted by Frank Warren, raises over £180,000

    We're delighted to announce that our annual Fight Night event has raised over £180,000 to help #FightEB, making it DEBRA's most successful Fight Night in 15 years!

  • DEBRA SLT members meet with Jennie Minto and Bob Dorris at Scottish Parliament

    DEBRA SLT members meet with Jennie Minto and Bob Dorris at Scottish Parliament

    We took a further step on our government campaigning journey today (Wednesday 22nd November) with a meeting held at the Scottish parliament with Jennie Minto MSP for Argyll and Bute and Minister for Public Health and Women's Health in Scotland, and our meeting sponsor, Bob Dorris, MSP for Glasgow Maryhill and Springburn.

Most read

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Graeme Souness swimming the English Channel  to raise £1.1m to stop the pain of EB

    Graeme Souness swimming the English Channel to raise £1.1m to stop the pain of EB

    Graeme Souness, ex-international footballer, manager, and pundit, is swimming the English Channel this June to raise £1.1m to stop the pain of epidermolysis bullosa (EB).

  • What is EB?

    What is EB?

    Epidermolysis bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Contact Us

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Imagine your skin being in constant pain? No one should have to live like this

    Imagine your skin being in constant pain? No one should have to live like this

    Imagine a dozen surgeries in less than a decade? No one should have to live like this. Please help us find treatments to #StopThePain.

  • Become a member

    Become a member

    If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.

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