Education resources & toolkit

If you're struggling and need support, our DEBRA EB Community Support Team are here to help during office hours. Please phone DEBRA Membership and Community Support on 01344 771961 and select Option 1.

Downloadable resources

DEBRA – information about EB (leaflets for schools)

Additional downloads

Templates & examples

EHC template - appeal or re-assessment
EHC template - requesting assessment
IHCP example 1 - Sarah's IHCP (using a template)
IHCP example 2 - David's IHCP (free text version)
IHCP template - your school may have their own preferred version

Tools for catching up whilst absent from school

Maths Whizz
Reading Eggs
Clicker (for writing)
Sounds Write (for phonics)

More resources are also available on our Learn Something New page (created for Things to do whilst staying at home)

Relevant agencies

Contact – for families with disabled children
Disability Rights UK – charity with a focus of supporting disabled people
IPSEA – independent provider of special education advice
Irwin Mitchell Solicitors – factsheets and template letters
Motability – providing support for disabled people
SCOPE – disability charity
Turn2us – financial support charity for people living in the UK
UCAS – universities and colleges admissions service

Helplines and phone support services

If you are in need of urgent support you can contact:

The Samaritans on 116 123 (freephone)
Childline on 0800 11 11
NHS
NHS 111 Service – call 111 when it’s less urgent than a 999 call but you need healthcare information

In an emergency go to your local Accident & Emergency (A&E) department or call 999 for an ambulance.

Additional support by phone

The following are some additional resources that you can contact by phone:

The Mix - 0808 808 4994 (freephone; 13:00-23:00 daily)
Changing Faces (support information & advice) - 0300 012 0275 or [email protected]
Student Space - 0808 189 5260 (free, confidential advice line) or text ‘STUDENT’ to 85258

Bullying can be considered a hate crime. To learn more about reporting bullying as a hate crime, please visit the Stop Disability Hate Crime page by Disability Rights UK.

Latest

06. The Beacon Patient Pairing Scheme 4th September – 30th October 2024
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DEBRA UK supporters, Paul Glover and Martyn Rowley, raise £115,000 for families living with EB

On Tuesday 3rd September, dedicated DEBRA UK supporters Paul Glover and Martyn Rowley were welcomed to DEBRA UK's head office to celebrate their outstanding achievement of raising £115,000 in 2024 to support those living with EB.
DEBRA UK Challenge 2024

This September, please support Graeme Souness in his challenge to ‘BE the difference for EB’.

Starting school

Starting school is a milestone moment but you may worry about how your child can be kept safe in a school environment. Find out more about starting school with EB.
Support at school

The level of support that your child or young person requires is not dependent on their EB type but on how it impacts them and their learning. Find out more about support at school for students with EB.
Friends, confidence and bullying

Sometimes, worrying about how you look or how other people might act can affect how you feel about yourself. Find out more about making friends, building confidence and dealing with bullying with EB.
Going to secondary school

Going to secondary school is a milestone for every young person as they transition from being the oldest in the school to the youngest in a new environment and amongst new friends. Find out more about going to secondary school with EB.
College and independence

As well as being an exciting time for many, living with EB and starting sixth form or college may also present challenges that other teenagers don’t need to think about. Find out more about going to college and independence with EB.
Preparing for university

University can be an exciting time, but you might also feel overwhelmed at the thought of being away from home or having to cope with new challenges. Find out more about preparing for university with EB.
Member tips, stories and more

We asked Members to tell their experiences of what life has been like living with EB and going through school – from primary through to university.
Guide for schools & teachers: Supporting a child living with EB

Attending school is a huge part of a child’s life. It provides structure and stability, as well as helping children develop crucial social, emotional and behavioural skills. Find out more about how schools and teachers can support a child living with EB.
FAQs in education

Based on our discussions with people living with EB and their families, we have put together a list of frequently asked questions in education for living with EB.