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  1. Home
  2. Support for the EB community

Support for the EB community

As a membership organisation, we aim to provide the best support and care for people living with EB. We have a team experienced in the many challenges EB can bring and can help members in many ways outlined below. We also forge close working relationships with specialist EB nurses, some of whom are funded by DEBRA, as well as other health and social care professionals to connect patients with the services that they need to improve their quality of life. Our friendly team are available to support members as frequently as is needed. 

How we can help

How we can help

We have a dedicated team with a wide range of skills, knowledge and experience to deliver EB support services including practical, financial, emotional support and advocacy for the EB community. Read more

Published: 1st September, 2020

Updated: 23rd June, 2022

Author: Wendy Garstin

Meet the Community Support Team

Meet the Community Support Team

Meet the team delivering essential EB support services, including practical, financial and emotional support and advocacy to the EB community. Read more

Published: 2nd September, 2020

Updated: 23rd June, 2022

Author: Wendy Garstin

Mental health & emotional distress

Mental health & emotional distress

If you are struggling and need support, our Community Support team is available for first line emotional support, or to signpost to further psychological support, from Monday - Friday (9am - 5pm). Read more

Published: 3rd September, 2020

Updated: 26th January, 2022

Author: Wendy Garstin

Carers

Carers

Every day 6,000 people become unpaid carers. You may find this information useful whether you yourself are a carer yourself or you receive support from a carer. Read more

Published: 4th September, 2020

Updated: 22nd March, 2022

Author:

Finances & benefits

Finances & benefits

People living with EB, and their families may be entitled to certain government benefits or other schemes for financial support, including grants provided by DEBRA. Read more

Published: 10th September, 2020

Updated: 27th January, 2022

Author: Wendy Garstin

Work & employment

Work & employment

If you are living with EB you may require some support throughout the employment process - from job searching and interviewing to understanding workplace and employment rights. Read more

Published: 15th September, 2020

Updated: 4th November, 2021

Author: Wendy Garstin

Learning & education

Learning & education

People living with EB may require support in their educational journey, as well as an understanding of EB by their schools and peers. Read more

Published: 26th October, 2020

Updated: 26th January, 2022

Author: Kat Heppinstall

End of life & bereavement

End of life & bereavement

We can offer a listening ear when grieving, refer you for further support in your local area, help make funeral arrangements, help you access benefit entitlements, as well as assist in creating a DEBRA remembrance page. Read more

Published: 31st October, 2020

Updated: 4th November, 2021

Author:

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Latest

  • Show Your Seams

    Show Your Seams

    Friday 21st October 2022 is #ShowYourSeams day. Don't miss out, sign up your school or company today. Wear your clothes inside out and make a donation to help improve the lives of people living with EB.

  • Mark Algar and Paul Buckworth complete 113km Ultramarathon to help #FightEB!

    Mark Algar and Paul Buckworth complete 113km Ultramarathon to help #FightEB!

    On the 18th June 2022, Mark Algar & Paul Buckworth took on an 113km Ultramarathon to help #FightEB.

  • DEBRA Memory Makers campaign raises £55,119!

    DEBRA Memory Makers campaign raises £55,119!

    Our #DEBRAMemoryMakers campaign has raised an incredible £55,119.30 towards our DEBRA holiday homes!

  • 7. To apply directly to DEBRA UK

Most read

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Contact Us

  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

  • Greenwich

    Greenwich

    17/23 Woolwich Road, Greenwich, London, SE10 0RA
    Tel: 0208 858 5194
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