Member events

We recognise the significant value of peer support to share experiences with friends and other families. DEBRA events offer you the opportunity to get together and enjoy social activities through our member events.

Online Member Get-Together

As part of our new member engagement project, DEBRA has been hosting online member get-togethers over Zoom. Read more

Online Event Guidelines

Our online member events and groups are run to help you connect with other members, support each other and gain useful tips and information. Read more

Parent pitstop (May)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

Members' Weekend 2022

Join us at our Members’ Weekend 2022 on the 14th and 15th May at Wokefield Estate, Reading, Berkshire. Read more

Parent pitstop (June)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

Parent pitstop (July)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

Parent pitstop (August)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

Parent pitstop (September)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

Parent pitstop (October)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

Parent pitstop (November)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

Parent pitstop (December)

Join other parents and carers to share tips and advice, laughs or wobbles in a supportive, non-judgemental space. Read more

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Current projects

Find information about the EB research projects we currently fund.
Swim Serpentine 2022

Take the opportunity to participate in an open water swimming festival at the famous Serpentine Lake in London's Hyde Park. Challenge yourself to a one mile, two mile or six mile swim.
Bath Half Marathon 2023

Join #TeamDEBRA and take on this challenge through the beautiful city of Bath. We will support you every step of the way.

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Furniture collection

Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.
Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.
Items we do not sell

Find out what health and safety standards and labels we require and which items we cannot sell.
Contact Us
What is EB?

Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.
Donate items

Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.
Work with us

DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.
Who we are

DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)
Our history

DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.
Dystrophic EB (DEB)

Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

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