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  1. Information & support
  2. Meet others with EB
  3. Member events

Member events

We recognise the significant value of peer support to share experiences with friends and other families. DEBRA events offer you the opportunity to get together and enjoy social activities through our member events.

Online Member Get-Together

Online Member Get-Together

As part of our new member engagement project, DEBRA has been hosting online member get-togethers over Zoom. Read more

Published: 1st July, 2020

Updated: 25th March, 2022

Author: Kat Heppinstall

Online Event Guidelines

Online Event Guidelines

Our online member events and groups are run to help you connect with other members, support each other and gain useful tips and information. Read more

Published: 1st September, 2020

Updated: 24th January, 2022

Author: Kat Heppinstall

Members' Weekend 2022

Members' Weekend 2022

Our Members’ Weekend 2022 took place on the 14th and 15th May at Wokefield Estate, Reading, Berkshire. Read more

Start: 14th May, 2022 at 10:00am

End: 14th May, 2022 at 11:00pm

Published: 14th May, 2021

Updated: 1st July, 2022

Author: Wendy Garstin

Location: De Vere Wokefield Estate, Goodboy's Lane, Reading, RG7 3AE

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Showing 10 of 3

Latest

  • Filsuvez® gel approved for use in the EU

    Filsuvez® gel approved for use in the EU

    The UK is a step closer to having the first approved treatment for EB patients.

  • Mark Algar and Paul Buckworth complete 113km Ultramarathon to help #FightEB!

    Mark Algar and Paul Buckworth complete 113km Ultramarathon to help #FightEB!

    On the 18th June 2022, Mark Algar & Paul Buckworth took on an 113km Ultramarathon to help #FightEB.

  • Leave a legacy

    Leave a legacy

    Leaving a gift in your will is a simple but vital way to help make sure DEBRA is there to provide care and support to people living with EB and fund life changing research.

  • DEBRA Memory Makers campaign raises £55,119!

    DEBRA Memory Makers campaign raises £55,119!

    Our #DEBRAMemoryMakers campaign has raised an incredible £55,119.30 towards our DEBRA holiday homes!

Most read

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Contact Us

  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

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DEBRA is registered as a Charity in England and Wales (1084958) and Scotland (SC039654).

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Registered office: DEBRA, The Capitol Building, Oldbury, Bracknell, Berkshire, RG12 8FZ

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