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  1. Information & support
  2. Support for you
  3. Learning & education

Learning & education

People living with EB may require support in their educational journey, as well as an understanding of EB by their schools and peers. The information included in this section aims to give an overview of options for people living with EB, as well as serve as a resource for educational settings to learn more about and better understand EB.

More information will be added as it's developed. Until then, or to talk through any of the information and how it relates to your individual situation, please contact your DEBRA EB Community Support Manager for assistance.

Starting school

Starting school

Starting school is a milestone moment but you may worry about how your child can be kept safe in a school environment. Find out more about starting school with EB. Read more

Published: 26th October, 2021

Updated: 21st March, 2022

Author: Kat Heppinstall

Support at school

Support at school

The level of support that your child or young person requires is not dependent on their EB type but on how it impacts them and their learning. Find out more about support at school for students with EB. Read more

Published: 26th October, 2021

Updated: 4th May, 2022

Author: Kat Heppinstall

Friends, confidence and bullying

Friends, confidence and bullying

Sometimes, worrying about how you look or how other people might act can affect how you feel about yourself. Find out more about making friends, building confidence and dealing with bullying with EB. Read more

Published: 26th October, 2021

Updated: 24th March, 2022

Author: Kat Heppinstall

Going to secondary school

Going to secondary school

Going to secondary school is a milestone for every young person as they transition from being the oldest in the school to the youngest in a new environment and amongst new friends. Find out more about going to secondary school with EB. Read more

Published: 26th October, 2021

Updated: 24th March, 2022

Author: Kat Heppinstall

College and independence

College and independence

As well as being an exciting time for many, living with EB and starting sixth form or college may also present challenges that other teenagers don’t need to think about. Find out more about going to college and independence with EB. Read more

Published: 26th October, 2021

Updated: 24th March, 2022

Author: Kat Heppinstall

Preparing for university

Preparing for university

University can be an exciting time, but you might also feel overwhelmed at the thought of being away from home or having to cope with new challenges. Find out more about preparing for university with EB. Read more

Published: 26th October, 2021

Updated: 24th March, 2022

Author: Kat Heppinstall

Member tips, stories and more

Member tips, stories and more

We asked Members to tell their experiences of what life has been like living with EB and going through school – from primary through to university. Read more

Published: 26th October, 2021

Updated: 24th March, 2022

Author: Kat Heppinstall

Guide for schools & teachers: Supporting a child living with EB

Guide for schools & teachers: Supporting a child living with EB

Attending school is a huge part of a child’s life. It provides structure and stability, as well as helping children develop crucial social, emotional and behavioural skills. Find out more about how schools and teachers can support a child living with EB. Read more

Published: 26th October, 2021

Updated: 4th May, 2022

Author: Kat Heppinstall

FAQs in education

FAQs in education

Based on our discussions with people living with EB and their families, we have put together a list of frequently asked questions in education for living with EB. Read more

Published: 26th October, 2021

Updated: 24th March, 2022

Author: Kat Heppinstall

Education resources & toolkit

Education resources & toolkit

If you're struggling and need support, our DEBRA EB Community Support Team are here to help Read more

Published: 26th October, 2021

Updated: 25th March, 2022

Author: Kat Heppinstall

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  • Current projects

    Current projects

    Find information about the EB research projects we currently fund.

  • Swim Serpentine 2022

    Swim Serpentine 2022

    Take the opportunity to participate in an open water swimming festival at the famous Serpentine Lake in London's Hyde Park. Challenge yourself to a one mile, two mile or six mile swim.

  • Bath Half Marathon 2023

    Bath Half Marathon 2023

    Join #TeamDEBRA and take on this challenge through the beautiful city of Bath. We will support you every step of the way.

Most read

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Contact Us

  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

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