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  1. Get involved
  2. Raise awareness
  3. #EBtome

#EBtome

Thank you to everyone who has joined us in raising awareness and building a wider understanding of EB. It has been great to hear your #EBtome stories and experiences as it really helps people to understand how EB affects people differently. You can read more #EBtome stories below. Find out more about EB.

Leslie Paine

Leslie Paine

Read more

Published: 3rd November, 2021

Updated: 10th December, 2021

Author: Kat Heppinstall

Fazeel & Nabeel

Fazeel & Nabeel

Read more

Published: 3rd November, 2021

Updated: 10th December, 2021

Author: Kat Heppinstall

The Talbot Family

The Talbot Family

Read more

Published: 3rd November, 2021

Updated: 10th December, 2021

Author: Kat Heppinstall

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  • Current projects

    Current projects

    Find information about the EB research projects we currently fund.

  • Swim Serpentine 2022

    Swim Serpentine 2022

    Take the opportunity to participate in an open water swimming festival at the famous Serpentine Lake in London's Hyde Park. Challenge yourself to a one mile, two mile or six mile swim.

  • Bath Half Marathon 2023

    Bath Half Marathon 2023

    Join #TeamDEBRA and take on this challenge through the beautiful city of Bath. We will support you every step of the way.

Most read

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Contact Us

  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

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DEBRA is registered as a Charity in England and Wales (1084958) and Scotland (SC039654).

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