Fight EB: Fazeel's storyFazeel lives with recessive dystrophic epidermolysis bullosa (RDEB).

Help Fazeel #FightEB!

My name is Fazeel and I have EB – a condition which makes my skin blister and tear really easily. 

I love playing games with my brothers and my sister, seeing my friends, going on the trampoline, doing karate and playing on my games console.

When I’m older I’m going to be a doctor and cure EB.

The worst thing about EB is the pain. The pain is incredible. I have to take so many painkillers every day – sometimes paracetamol and ibuprofen, sometimes ones so extreme they put you to sleep.

Then there’s the itch. Some days there is no itch at all and sometimes I have days where I just can’t stop itching.

And there is normal stuff like eating. I can’t eat hard foods, like crisps, because that creates blisters in my mouth, and I find it difficult to eat a lot because that also causes blistering.

Donating to DEBRA really will help a cure happen.

I can’t play roughly, like other people. Although I go on the trampoline, I don’t do any tricks. When you have EB, a lot of things are restricted. You have to think about every single thing you do. Other children don’t have to do that.

That’s why I want to find a cure for EB if DEBRA hasn’t found one by the time I’m old enough to be a doctor.

DEBRA also helps me now.

DEBRA’s Members’ Day is awesome – I’ve been to two so far. It’s a special day for people with EB to meet each other and spend time together. There is so much fun stuff to do.

The EB nurses are amazing. They know everything – without them, I probably wouldn’t know what to do with all the creams and dressings I have to put on every day to protect my skin.

DEBRA is an amazing charity. Your donations will count.

If you donate to DEBRA, you’ll make life easier for people suffering from EB and you’ll help to find a cure. I’ll be happy, you’ll be happy.

Together, I know we can do this!