They are informal, online meetings bringing together DEBRA members and EB researchers before they apply for funding, to discuss research proposals and shape them together.

For members this is a chance to get closer to the EB research in the pipeline, and to put your questions about the research to the researchers themselves.

For researchers it’s a great public/patient involvement (PPI) opportunity while getting your research proposal ready for submission.  You can question those directly affected by EB about particular elements of your research design, or you can get feedback on the ‘abstract’ and ‘value to EB’ sections of your proposal.