An event for parents of children living with EB
(carers and grandparents welcome!)

Are you a parent of a child with EB? Come and meet with other parents and carers at our virtual parent pitstop on the first Wednesday of every month at 12:30pm over Zoom.

You can share tips and advice, laughs or wobbles with others in a supportive, non-judgemental space. There will be the opportunity to talk about the things that are important to you – what to consider when choosing a nursery, tips on how to keep your child with EB cool over summer or how to explain EB to your child.

Please refer to our online event guidelines for more information on making time together enjoyable for everyone. 

Contact our Membership Team via [email protected] or phone 01344 771961 (Option 1) to register, learn more or for any accessibility requirements.