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  1. Get involved

Get involved

We need your help. Epidermolysis Bullosa (EB) is a group of painful genetic skin conditions that cause the skin to tear and blister at the slightest touch. It is a rare condition but because it is rare, few people know about it.

With your support we can continue to provide the specialist services and support that the EB community needs and accelerate the pace and breadth of our research. Please see below for some ideas on how you can get involved. Thank you.

Donate

Donate

You can support DEBRA UK through regular and one-off donations, signing up to a fundraising event, arranging your own fundraising event, joining the DEBRA lottery or donating your unwanted goods for our stores. Read more

Published: 14th January, 2022

Author: Stephanie Webb

Become a member

Become a member

We are committed to supporting families affected by EB in the UK, whether or not they are members. However, becoming a DEBRA member makes it easier to access our services. Read more

Published: 15th January, 2022

Updated: 12th May, 2022

Author: Wendy Garstin

Fundraise for us

Fundraise for us

Your support will make a big difference as we #FightEB together. There are lots of resources to help you with your fundraising and we are also on hand to support you every step of the way. Read more

Published: 16th January, 2022

Updated: 26th January, 2022

Author: Kat Heppinstall

Join an event

Join an event

From fundraising challenges and free member get-togethers to training events for professionals, we offer a variety of events you can take part in. Read more

Published: 17th January, 2022

Updated: 26th January, 2022

Author:

Corporate partnerships

Corporate partnerships

We can help your company achieve your CSR goals, engage your staff and attract clients by building a really strong corporate partnership. We work with companies in a variety of ways, tailoring each partnership to ensure it meets mutual goals. Read more

Published: 18th January, 2022

Updated: 26th January, 2022

Author: Kat Heppinstall

Trusts & foundations

Trusts & foundations

DEBRA's work wouldn't be possible without the help of our supporters, and this includes charitable trusts and foundations. Read more

Published: 19th January, 2022

Updated: 26th January, 2022

Author:

Leave a legacy

Leave a legacy

Leaving a gift in your will ensures that you can help continue the advancement towards a cure and the improvement of quality of life for people with EB. Your legacy can be to continue to #FightEB Read more

Published: 20th January, 2022

Updated: 26th January, 2022

Author:

Raise awareness

Raise awareness

EB can have a huge impact on not just the individual’s life, but their family too. Meet our heroes who have bravely shared their story about what it’s like to live with EB. Read more

Published: 21st January, 2022

Updated: 26th January, 2022

Author:

Volunteer for us

Volunteer for us

Our wide range of volunteering opportunities and flexible approach mean that you decide how and where you give your time. Read more

Published: 22nd January, 2022

Updated: 26th January, 2022

Author:

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Showing 10 of 9

Latest

  • Filsuvez® gel approved for use in the EU

    Filsuvez® gel approved for use in the EU

    The UK is a step closer to having the first approved treatment for EB patients.

  • Mark Algar and Paul Buckworth complete 113km Ultramarathon to help #FightEB!

    Mark Algar and Paul Buckworth complete 113km Ultramarathon to help #FightEB!

    On the 18th June 2022, Mark Algar & Paul Buckworth took on an 113km Ultramarathon to help #FightEB.

  • Leave a legacy

    Leave a legacy

    Leaving a gift in your will is a simple but vital way to help make sure DEBRA is there to provide care and support to people living with EB and fund life changing research.

  • DEBRA Memory Makers campaign raises £55,119!

    DEBRA Memory Makers campaign raises £55,119!

    Our #DEBRAMemoryMakers campaign has raised an incredible £55,119.30 towards our DEBRA holiday homes!

Most read

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Contact Us

  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

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DEBRA is registered as a Charity in England and Wales (1084958) and Scotland (SC039654).

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Registered office: DEBRA, The Capitol Building, Oldbury, Bracknell, Berkshire, RG12 8FZ

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