07. How has DEBRA been involved?

We have been working with NICE to ensure that the experience of our members is represented in their process for bringing this treatment to the UK, ensuring that NICE hears the DEBRA voice. DEBRA members will also be invited to become involved. If you are interested in our research opportunities for members, please complete our survey.

We’ll work with the specialist centres and EB nurses to ensure that those affected can access this treatment.