Question 13 - Travel

General

• Are you able to plan and follow a route to a place you know?
• Are you able to plan and follow a bus or train route to a place you do not know?
• Are you able to cope in places that you do not know?
• Do you struggle to leave the house because of stress or anxiety?
• Do you require someone to go out with you – either to somewhere you know or do not know?
• Are you stressed or anxious when planning travel?
• If your journey is disrupted, are you confident planning and going an alternative route?
• Do you find it difficult to cope with large crowds or loud noises?
• Do you require encouragement from someone else to go out?
• Do you struggle to understand public transport routes? (e.g. train, bus) 
• Do you require journeys to be accessible? (e.g. lifts, ramps, etc.)

Relating to EB

• Do you have trouble getting people to understand and allow for your EB? (e.g. difficulty walking)
• Do you worry about the length of travel in anticipation of pain and/or not knowing where rest breaks might be located?
• Do you require additional considerations because of your EB? (e.g. wheelchair)
• Do you worry or feel anxious that someone may knock into and cause a blister whilst in public?
• Are you worried other might judge you whilst in public and on public transport?
• Does moving around and travelling cause you additional pain?
• Do you have to take additional medication(s) or bring extra dressings on your journey/trip?
• Do you feel a lack of independence if you rely on someone else to help you travel?
• Does it take you longer to travel, including rest periods?
• Do you experience increased pain overall due to increased stress and anxiety?
• What would help with travel that you don’t currently have and how would it help? (e.g. blue badge so you can plan where to park)