General

  • Do you find it difficult to dress yourself?
  • Do you require help getting dressed and/or undressed?
  • Who helps and how long does it take, including rest periods?
  • Do you lack the motivation to dress yourself?
  • Do you find it difficult to decide appropriate clothing for the time of day or weather?
  • Are you able to keep your clothes clean?

Relating to EB

  • If you do not have nails, do you find it difficult to manage with buttons?
  • Do you need help with zippers, buttons or laces?
  • Who helps and how long does it take – including rest periods?
  • Are you restricted to wearing certain fabrics, which makes you choose clothes carefully?
  • Do you have to alter your clothes or how you wear them? (e.g. inside out, cutting neckline)
  • Do you have to do anything special to make sure clothes are soft enough for you to wear?
  • If applicable, are you able to wear a bra or do you have to make any adjustments for this?
  • Do you have to do anything special to wear socks or shoes?
  • Are you able to wear socks and shoes?
  • Does this cause you any additional pain or distress?
  • Do you have to wear clothes over your dressings?
  • Does removing clothing cause pulling on your skin or bleeding?
  • Do you cut or soak your clothes to remove them?
  • Do you have to change your clothes multiple times a day?
  • Do you worry about your wounds making you smell or getting creams and ointments on your clothes?