04. Can I get it on the NHS?

Yes Filsuvez® is available on prescription now for patients aged 6 months+ with Junctional and Dystrophic EB in England, Wales, and Northern Ireland. Filsuvez® has also been approved by the Scottish Medicines Consortium and we expect it to be available on prescription through NHS Scotland following agreement between Chiesi, the pharmaceutical company who developed the drug, and the Scottish Government on the data collection requirements, this is expected by September 2024.

Latest

Graeme Souness and Team DEBRA to take on new challenge to BE the difference for EB

DEBRA UK Vice President Graeme Souness CBE and Team DEBRA are back this September with another epic challenge to ‘BE the difference for EB.
Scott Brown becomes an ambassador for DEBRA UK

We are delighted to be able to count on the support of Scott Brown, the former Scotland international and Celtic FC midfielder as an official DEBRA UK Ambassador.
DEBRA Quarterly Update 2024 Q2

An update from our board of trustees, including key activities undertaken in the second quarter of 2024, and the progress we are making to BE the difference for EB.
DEBRA UK launches EB simplex (EBS) Impact Report

Our EBS Impact Report summarises the many ways in which we support people with EBS today and the research projects we’re currently funding that could directly benefit the EBS community.

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Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.
Furniture collection

Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.
Items we do not sell

Find out what health and safety standards and labels we require and which items we cannot sell.
What is EB?

Epidermolysis bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.
Graeme Souness swimming the English Channel to raise £1.1m to stop the pain of EB

Graeme Souness, ex-international footballer, manager, and pundit, is swimming the English Channel this June to raise £1.1m to stop the pain of epidermolysis bullosa (EB).
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Donate items

Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.
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DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.
Become a member

If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.
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17/23 Woolwich Road, Greenwich, London, SE10 0RA
Tel: 0208 858 5194
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