03. Development of an app to detect RDEB SSC from photographs

Northwestern University (Chicago, USA) researchers are looking for people with RDEB and history of SCCs to contribute photographs of their skin lesions. The aim is to create a web application for patients with RDEB to upload images of their skin and get an output as to SSC present/no SCC.

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DEBRA raises £5 million to help stop the pain of EB

We're delighted to share with you the news that since we launched DEBRA’s A Life Free of Pain appeal, we have raised over £5m to help stop the pain of EB.
How and why had this condition suddenly invaded my family without warning?

I had never heard of EB before and I naively thought the blisters which were appearing on Georgia’s tiny body would heal - but when a doctor explained the full extent of EB to me I found the horror difficult to comprehend.
Parent Pitstop: March 2024

Parent Pitstops are an opportunity to connect with other members online. We will update this page with more details about our March event soon.
Parent Pitstop: January 2024

Parent Pitstops are an opportunity to connect with other members online. We will update this page with more details about our January event soon.

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Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.
Furniture collection

Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.
Items we do not sell

Find out what health and safety standards and labels we require and which items we cannot sell.
Graeme Souness swimming the English Channel to raise £1.1m to stop the pain of EB

Graeme Souness, ex-international footballer, manager, and pundit, is swimming the English Channel this June to raise £1.1m to stop the pain of epidermolysis bullosa (EB).
What is EB?

Epidermolysis bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.
Contact Us
Donate items

Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.
Work with us

DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.
Imagine your skin being in constant pain? No one should have to live like this

Imagine a dozen surgeries in less than a decade? No one should have to live like this. Please help us find treatments to #StopThePain.
Become a member

If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.

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