07. NOW CLOSED Help researchers better understand the impact of DEB

Help researchers at the University of York better understand the impact of DEB by completing a 10min questionnaire. People with DEB aged 13 years and above may complete the survey by themselves but a parent/caregiver should complete the survey on behalf of children with DEB aged 12 years and below. The survey will include graphic images of wounds and ask you to describe the impact these would have on yourself or your child. This study is sponsored by a gene therapy company that develops and commercialises treatment for dermatological diseases and your answers will be used anonymously to make funding decisions. The results may be fed back via publication in academic journals, presentation at scientific conferences and/or in a case study on the York University website.