Thank you to everyone who completed the 2023 survey. Results have been written up and published in a report.

Read the Rareminds 2023 report 

Rareminds have launched their wellbeing hub bringing information and resources together to help people live as well as possible with rare conditions.

Access the Rareminds wellbeing hub


Rareminds are a not-for-profit Community Interest Company providing affordable, timely access to highly specialised counselling and wellbeing resources for people living with rare conditions. They would like anyone impacted by rare diseases (people with a rare condition, carers, family members and patient/support group leaders) to take 5-10min to complete this survey.