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  1. Information & support

Coronavirus (COVID-19) Support

Information & advice

For information and advice regarding Coronavirus (COVID-19), also known simply as COVID, you should always consult and follow the advice given by your national government, the NHS and other regulatory authorities.

Visit the gov.uk/coronavirus website for more information.

Is there any special COVID-19 advice if I have EB?

There is currently no specific advice to EB patients because EB impacts everyone differently. If you are in contact with any health services you should mention that you have EB along with how it affects you, so they provide the best care. This may include mentioning if you are immuno-suppressed, on particular medications, are concerned you may blister if swabbed, may struggle to wear a mask or cannot tolerate a sticking plaster.

Our I have EB cards can be useful in this situation. You may also wish to show them our Managing EB patients page, which can be useful in an emergency or in routine medical situations.

Healthcare (including vaccines)

If you have any questions or concerns about COVID and EB, including vaccination, consult your healthcare provider and/or EB healthcare team. You can also view DEBRA International's COVID-19 Vaccines and Epidermolysis Bullosa (EB) booklet, which has been reviewed by EB clinical experts. The booklet also contains questions and answers and information about vaccines in general, taken from reputable sources, such as gov.uk and NHS.

Community Support

If you need support with matters not relating to COVID or healthcare, our EB Community Support Team are here to help (during office hours). Over team supports members with a wide range of enquiries, including benefits, housing, education, EB friendly clothing and much more.

The team can listen to any questions or concerns you might have, provide further information or make referrals to relevant agencies and organisations. Learn more on our website about how we can help or phone us on 01344 771961 (Option 1).

Published: 18th September, 2020

Updated: 22nd March, 2022

Author: Wendy Garstin

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    Find information about the EB research projects we currently fund.

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    DEBRA produces a range of high-quality booklets designed to give anybody living with EB, including individuals, families and carers, reliable information.

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    Meet others with EB

    We recognise the significant value of peer support to share experiences with friends and other families. DEBRA events offer you the opportunity to get together and enjoy social activities.

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    DEBRA Holiday Homes

    Located in some of the most popular and beautiful 5-star rated parks in the UK, members can be as active or relaxed as needed in our adapted holiday homes with a wide range of activities.

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    As a membership organisation, we aim to provide the best support and care for people living with EB. We have a team experienced in the many challenges EB can bring and can help members in many ways.

  • Treatments & healthcare

    Treatments & healthcare

    There is currently no cure for EB, but at DEBRA UK we're working hard to change this. Treatments are designed to help ease and control symptoms such as pain and itch to improve quality of life.

  • About EB

    About EB

    Epidermolysis Bullosa (EB) is the name for a group of painful genetic skin conditions that cause the skin to become very fragile and tear or blister at the slightest touch.

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  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

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    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

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