Skip over main navigation
  • Log in
  • Basket: (0 items)
  • Contact us
DEBRA UK
Tagline goes here! Become a member Find a store Find an event DONATE Contact us
  • Twitter
Menu
  • Emergencies
  • EB support
    • Become a member
    • About EB
    • Support for you
    • Treatments & healthcare
    • Get involved
    • DEBRA Holiday Homes
    • Meet others with EB
    • Knowledge hub
  • Healthcare professionals
    • EB patient management
    • Specialist healthcare
    • Training events
    • Clinical Practice Guidelines
    • Additional resources
  • EB Research
    • Our research
    • Apply for research funding
    • Get involved in research
    • Types of therapies
    • Research news
    • Research blogs, podcasts & videos
  • About us
    • Who we are
    • Our people
    • Work with us
    • How we are governed
    • DEBRA Scotland
  • Support us
    • Donate
    • Fundraise
    • Gifts in Wills
    • DEBRA lottery
    • Volunteer
    • Events
    • Corporate partnerships
    • Trusts & foundations
  • Shop
    • Find a store
    • Furniture collection
    • Donate items
    • Our eBay store
    • DEBRA Christmas Cards
    • Volunteer in our stores
    • Why shop with us
  • News & blog
    • News
    • Blog
    • In memory
  • Admin
    • Log in
    • Contact us
  • Basket: (0 items)
  1. Home
  2. Information & support

Information & support

DEBRA UK is the national charity for people living with the painful genetic skin blistering condition, EB, their families and carers. This section aims to provide information, support and resources to help raise awareness of EB as well as support the EB community.

If you are living with EB and would like more specific information and support, please contact the Community Support Team. You can also contact us for any other queries.

About EB

About EB

Epidermolysis Bullosa (EB) is the name for a group of painful genetic skin conditions that cause the skin to become very fragile and tear or blister at the slightest touch. Read more

Published: 19th September, 2020

Updated: 26th January, 2022

Author:

Treatments & healthcare

Treatments & healthcare

There is currently no cure for EB, but at DEBRA UK we're working hard to change this. Treatments are designed to help ease and control symptoms such as pain and itch to improve quality of life. Read more

Published: 20th September, 2020

Updated: 26th January, 2022

Author: Wendy Garstin

Support for you

Support for you

As a membership organisation, we aim to provide the best support and care for people living with EB. We have a team experienced in the many challenges EB can bring and can help members in many ways. Read more

Published: 22nd September, 2020

Updated: 26th January, 2022

Author: Wendy Garstin

DEBRA Holiday Homes

DEBRA Holiday Homes

Located in some of the most popular and beautiful 5-star rated parks in the UK, members can be as active or relaxed as needed in our adapted holiday homes with a wide range of activities. Read more

Published: 24th September, 2020

Updated: 26th January, 2022

Author: Wendy Garstin

Meet others with EB

Meet others with EB

We recognise the significant value of peer support to share experiences with friends and other families. DEBRA events offer you the opportunity to get together and enjoy social activities. Read more

Published: 25th September, 2020

Updated: 26th January, 2022

Author: Wendy Garstin

Knowledge hub

Knowledge hub

DEBRA produces a range of high-quality booklets designed to give anybody living with EB, including individuals, families and carers, reliable information. Read more

Published: 26th September, 2020

Updated: 30th October, 2023

Author: Kat Heppinstall

Back to top

Latest

  • Dine with DEBRA lunch aboard the Fingal, Edinburgh raises £20,000

    Dine with DEBRA lunch aboard the Fingal, Edinburgh raises £20,000

    We’re thrilled to announce our dine with DEBRA lunch aboard the floating Fingal hotel in Edinburgh has raised £20,000 towards our A Life Free of Pain appeal.

  • Your feedback is vital

    Your feedback is vital

    We welcome your feedback. Please let us know if you have any suggestions for improvements to our EB information. We’d also love to hear from you if you think we are doing something well.

  • DEBRA Fight Night 2023, hosted by Frank Warren, raises over £180,000

    DEBRA Fight Night 2023, hosted by Frank Warren, raises over £180,000

    We're delighted to announce that our annual Fight Night event has raised over £180,000 to help #FightEB, making it DEBRA's most successful Fight Night in 15 years!

  • DEBRA SLT members meet with Jennie Minto and Bob Dorris at Scottish Parliament

    DEBRA SLT members meet with Jennie Minto and Bob Dorris at Scottish Parliament

    We took a further step on our government campaigning journey today (Wednesday 22nd November) with a meeting held at the Scottish parliament with Jennie Minto MSP for Argyll and Bute and Minister for Public Health and Women's Health in Scotland, and our meeting sponsor, Bob Dorris, MSP for Glasgow Maryhill and Springburn.

Most read

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Graeme Souness swimming the English Channel  to raise £1.1m to stop the pain of EB

    Graeme Souness swimming the English Channel to raise £1.1m to stop the pain of EB

    Graeme Souness, ex-international footballer, manager, and pundit, is swimming the English Channel this June to raise £1.1m to stop the pain of epidermolysis bullosa (EB).

  • What is EB?

    What is EB?

    Epidermolysis bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Contact Us

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Imagine your skin being in constant pain? No one should have to live like this

    Imagine your skin being in constant pain? No one should have to live like this

    Imagine a dozen surgeries in less than a decade? No one should have to live like this. Please help us find treatments to #StopThePain.

  • Become a member

    Become a member

    If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.

Tag cloud

Wheelchair accessible

Stay in touch

We would like to keep you updated by email about our news, events, activities, and how you can support us.

You can unsubscribe at any time. To learn more about how we'll use your data, read DEBRA's privacy policy.

Alternatively, become a member to receive information tailored for people living and working with EB. 

 

 

Helpful links

  • About us
  • Careers
  • Our reports
  • Our policies
  • Contact us

Our stores

  • Find your local store
  • Furniture collection
  • Become a volunteer
  • Donate items
  • Why shop with us

Get involved

  • Join an event
  • Fundraise for us
  • Corporate partnerships
  • Leave a legacy
  • Raise awareness
  • Sitemap
  • Accessibility
  • Terms & conditions
  • Privacy policy
  • Cookies
  • Modern Slavery

  • Facebook
  • Twitter
  • Instagram
  • LinkedIn
  • YouTube

Fundraising regulator logoAssociation of Medical Research Charities logo Chartered Institute of Fundraising logo  CAF International - Validated organization badge

DEBRA is registered as a Charity in England and Wales (1084958) and Scotland (SC039654).

Company limited by guarantee registered in England and Wales (4118259).  © 2023
Registered office: DEBRA, The Capitol Building, Oldbury, Bracknell, Berkshire, RG12 8FZ

Manage Cookie Preferences