DEBRA UK is the national charity for people living with the painful genetic skin blistering condition, EB, their families and carers. This section aims to provide information, support and resources to help raise awareness of EB as well as support the EB community.
If you are living with EB and would like more specific information and support, please contact the Community Support Team. You can also contact us for any other queries.
There is currently no specific advice to EB patients because EB impacts everyone differently. If you are in contact with any health services you should mention that you have EB along with how it affects you, so they provide the best care. Read more
Epidermolysis Bullosa (EB) is the name for a group of painful genetic skin conditions that cause the skin to become very fragile and tear or blister at the slightest touch. Read more
There is currently no cure for EB, but at DEBRA UK we're working hard to change this. Treatments are designed to help ease and control symptoms such as pain and itch to improve quality of life. Read more
As a membership organisation, we aim to provide the best support and care for people living with EB. We have a team experienced in the many challenges EB can bring and can help members in many ways. Read more
Located in some of the most popular and beautiful 5-star rated parks in the UK, members can be as active or relaxed as needed in our adapted holiday homes with a wide range of activities. Read more
We recognise the significant value of peer support to share experiences with friends and other families. DEBRA events offer you the opportunity to get together and enjoy social activities. Read more
DEBRA produces a range of high-quality booklets designed to give anybody living with EB, including individuals, families and carers, reliable information. Read more