Our Parent Pitstops are online events providing an opportunity for parents, grandparents and carers to connect via Zoom and share experiences and ideas about topics relevant to children and families living with all types of EB.
The Parent Pitstop was a great forum to exchange experiences and discuss practical problems with regards to our children with EB. Being completely new to this new life with a child with EB, it was great to know you're not alone and there is a community to support you. It was also the place I made close friendships, with people who truly understand what you are going through. DEBRA Member
The Parent Pitstop was a great forum to exchange experiences and discuss practical problems with regards to our children with EB. Being completely new to this new life with a child with EB, it was great to know you're not alone and there is a community to support you. It was also the place I made close friendships, with people who truly understand what you are going through.
DEBRA Member
This session will be an opportunity to meet other members, and exchange tips and experiences of parenting children with EB. Read more