06. How will I get Filsuvez®?

Filsuvez® can only be prescribed by the four specialist centres in the UK.

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Do your own challenge, your way, to help BE the difference for EB. We need YOU to help us raise funds and awareness to give hope to those suffering from this heart breaking condition.
06. The Beacon Patient Pairing Scheme 4th September – 30th October 2024
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DEBRA UK supporters, Paul Glover and Martyn Rowley, raise £115,000 for families living with EB

On Tuesday 3rd September, dedicated DEBRA UK supporters Paul Glover and Martyn Rowley were welcomed to DEBRA UK's head office to celebrate their outstanding achievement of raising £115,000 in 2024 to support those living with EB.

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Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.
Furniture collection

Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.
Items we do not sell

Find out what health and safety standards and labels we require and which items we cannot sell.
What is EB?

Epidermolysis bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.
Graeme Souness swimming the English Channel to raise £1.1m to stop the pain of EB

Graeme Souness, ex-international footballer, manager, and pundit, is swimming the English Channel this June to raise £1.1m to stop the pain of epidermolysis bullosa (EB).
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Donate items

Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.
Work with us

DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.
Become a member

If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.
Isla's Story

We’re a normal family. Our children, Isla and Emily, go to school, have their friends round and like to play on the trampoline. But when one of your children has EB, you have to redefine normal.

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