Question 14 - Getting around General Are you able to stand without help? Are you able to walk without stopping and without help? Relating to EB What do you have to do to ‘save your feet’? (e.g. planning only essential walking to limit damage) How often are you in pain? What footwear do you have to consider? Do you require additional considerations because of your EB? (e.g. crutches, wheelchair) Do you hold on to furniture, position soft rugs to help in the home, crawl, bum shuffle, not walk at all, use family/friends to fetch things for you in your home or walk on the sides of your feet? How far are you able to walk? How many metres and how often do you have to stop/rest? Could you repeat this? (e.g. walk one day but unable to walk the next day due to walking the previous day) Are you in pain or do you have to take pain relief? What happens if you walk too much? Do you have to rest/stop for the rest of the day, a few days, a week or weeks? Do you still walk if you have blisters on your feet? Do you have to take pain relief for blisters that affect your ability to walk? Do you walk in an uneven way due to blisters and pain? How does this affect other areas of your body? (e.g. back, knees, hips) Do you ever stumble or fall due to pain or walking in an unsteady way due to blisters? Do you have any ‘home remedies’ to help with pain? (e.g. soaking feet in cold water) Do you have to wear any dressings or special shoes in order to walk? Do you require evaluation of your feet with a physio because of pain, gait alignment, etc.? Do you have to adjust your way of walking? Does the temperature affect your ability to walk? Do you have to limit how much you walk or how often? Do you have to plan ahead of time for this, including rest periods? Does your workplace or college/university make allowances for your restricted mobility? Are you restricted in the choices you have, such as where you go or what job you can do? Manage Cookie Preferences