09. Are there any side effects?

Please see the Filsuvez® patient information leaflet from the Electronic Medicines Compendium (EMC) enclosed with Filsuvez® gel for more detailed information on side effects.

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James Lind Project FAQs

Frequently asked questions about the James Lind Project and why it is so important for the EB community.
10. What if I need more support to take part in this research?
09. Why is DEBRA spending money on this sort of study?
08. Can I still take part if I don’t have an official diagnosis of EB?

Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.
Furniture collection

Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.
Items we do not sell

Find out what health and safety standards and labels we require and which items we cannot sell.
What is EB?

Epidermolysis bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.
Graeme Souness swimming the English Channel to raise £1.1m to stop the pain of EB

Graeme Souness, ex-international footballer, manager, and pundit, is swimming the English Channel this June to raise £1.1m to stop the pain of epidermolysis bullosa (EB).
Contact Us
Donate items

Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.
Work with us

DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.
Become a member

If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.
Imagine your skin being in constant pain? No one should have to live like this

Imagine a dozen surgeries in less than a decade? No one should have to live like this. Please help us find treatments to #StopThePain.