03. What will the research involve?

This study is now closed. Watch out for the results!

This study involved two stages: 

Stage 1 will involve a 60-minute (or 2 x 30 minutes if preferred) webcam interview with a trained interviewer via Zoom, Teams or your preferred platform. We are looking to speak to around 20 people with lived experience of having EB, and carers of people with EB, to discuss their experiences of the condition. To thank you for your time and involvement we will send you a £60 voucher for either Amazon, Marks and Spencer, or John Lewis.  Stage 1 has now ended, thank you to everyone who took part.

Stage 2 is an online survey that we would like as many people as possible to participate in.