02. Rare Minds Matter: Mental Health Survey 2023

Rareminds are a not-for-profit Community Interest Company providing affordable, timely access to highly specialised counselling and wellbeing resources for people living with rare conditions. They would like anyone impacted by rare diseases (people with a rare condition, carers, family members and patient/support group leaders) to take 5-10min to complete this survey.

Take the survey

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DEBRA UK holds panel discussion at the LifeArc Translational Science Summit

DEBRA UK member and ambassador, Lucy Beall Lott, Vice President, Graeme Souness, CEO, Tony Byrne, and Director of Research, Dr Sagair Hussain, held a panel discussion at the LifeArc Translational Science Summit at the Business Design Centre in London.
01. Parent and Sibling Experiences of EB - interviews
Things to do before the event

Find out about the important things there are to do before you come to Members' Weekend.
DEBRA UK partners with the Cancer Research UK Scotland Institute to tackle early onset cancer in patients with RDEB

DEBRA UK is pleased to announce a new long-term research partnership with the world-renowned Cancer Research UK (CRUK) Scotland Institute, formerly the Beatson Institute, in Glasgow, UK.

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Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.
Furniture collection

Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.
Items we do not sell

Find out what health and safety standards and labels we require and which items we cannot sell.
What is EB?

Epidermolysis bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.
Graeme Souness swimming the English Channel to raise £1.1m to stop the pain of EB

Graeme Souness, ex-international footballer, manager, and pundit, is swimming the English Channel this June to raise £1.1m to stop the pain of epidermolysis bullosa (EB).
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Donate items

Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.
Work with us

DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.
Become a member

If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.
Imagine your skin being in constant pain? No one should have to live like this

Imagine a dozen surgeries in less than a decade? No one should have to live like this. Please help us find treatments to #StopThePain.

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